Miruvor
Sign up
ME/CFS Mild → relapsedIll 6 years before improving or writing

CFS relapse after years of doing well, too drained to get up for a drink

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
6 years
Last post
Jan 2019
In their words
  • Condition: ME/CFSmy cfs is worsening again In context ↗
  • At worst: MildI find myself only just being able to make it through my A level classes, the second I get home or not too long after I’m too drained to even get up for a drink most of the time. In context ↗
  • Now: RelapsedI’ve been doing great the past few years ... I’m scared that my cfs is worsening again. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

Request to remove this story

Summary

Meadow 27659 had CFS from about age 13 and was doing well for the past few years. In January 2019, aged nearly 19, they were only just getting through A level classes and too drained on getting home to get up for a drink, and feared a relapse. They restarted supplements that had helped before, unsure they would work again, and splashed cold water on their face to ease brain fog during exams.

Ask Miruvor AI

Asking aboutMeadow 27659’s story

What they tried

Also tried

Their words about each treatment
  • splash cold water on my face/neck · HelpedIf I get clouded I go to the bathroom and splash cold water on my face/neck. It can help a little sometimes. In context ↗
  • supplements · HelpedIve started taking some supplements again that seemed to help before, but I’m worried it’s not going to do anything this time. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
about 2013CFS begansufferer of 6 years In context ↗Not stated
past few years before Jan 2019doing great for a few yearsI’ve been doing great the past few years In context ↗Not stated
2019-01-30CFS worsening again, only just making it through A level classesI find myself only just being able to make it through my A level classes ... I’m too drained to even get up for a drink most of the time In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogIf I get clouded I go to the bathroom and splash cold water on my face/neck. In context ↗
  • Post-exertional malaisethe second I get home or not too long after I’m too drained to even get up for a drink most of the time In context ↗

Ask Miruvor AI

Asking aboutMeadow 27659’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime