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Long COVID Moderate → somewhat betterIll 3 years before improving or writing

Long COVID three years, unable to focus or answer texts, now somewhat better with NAC

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
3 years
Last post
Oct 2023
In their words
  • Condition: Long COVIDI am 3 years now with LC. In context ↗
  • At worst: ModerateI had no ability to focus for 3 years and no energy to even answer texts, among a lot of other symptoms. In context ↗
  • Now: Somewhat betterI have finally gotten to the point where I have some energy and can read again. In context ↗
  • Began after: COVIDI am 3 years now with LC. In context ↗
Read from 2 of their posts and comments; links to the one this page draws on

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Summary

A woman who had long COVID for three years described being unable to focus and having no energy even to answer texts, plus episodes of hopelessness. In late 2023 she reported having some energy and being able to read again while using NAC, nattokinase, 7 mg nicotine patches and vitamin D, and said she had learned to supplement zinc with NAC. She had just started testosterone and did not yet know if it would help.

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Asking aboutPetrel 69208’s story

What they tried

Their words about each treatment
  • NAC · HelpedI have found using NAC, Nattokinase, Nicotine patches 7 mg, Vitamin D In context ↗
  • Nicotine patches · HelpedNicotine patches 7 mg ... I went from not having dreams or being able to sleep to sleeping better and having vivid dreams In context ↗
  • testosterone · Not saidMy testosterone was very low ... I have just started this so I am not sure yet of the benefits or consequences. In context ↗

Approaches: Anticoagulants · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2020Long COVID onsetI am 3 years now with LC. In context ↗Moderate
2020-2023three years with no focus and no energyI had no ability to focus for 3 years and no energy to even answer texts In context ↗Moderate
2023-10-09some energy and able to read again after supplements and nicotine patchesI have finally gotten to the point where I have some energy and can read again. In context ↗Mild

Adverse events

  • “At first I felt like I was in a weird kind of hyper alertness” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Brain fogI had no ability to focus for 3 years and no energy to even answer texts In context ↗
  • Sleep problemsI went from not having dreams or being able to sleep to sleeping better and having vivid dreams In context ↗
  • Anxiety & low moodHopelessness has been my biggest obstacle. In context ↗

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