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Long COVID Severe → much betterIll 13 months before improving or writing

Mostly bedbound with long COVID for three months, now much better with low-dose naltrexone

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
13 months
Last post
Apr 2026
In their words
  • Condition: Long COVIDBeen dealing with this for 13 months now. In context ↗
  • At worst: SevereAt my worst I was practically bed bound (first 3 months). In context ↗
  • Now: Much betterI'd say I have recovered around 50%, being able to get through work and most activities, but not in an easy way. In context ↗
  • Began after: COVIDr/covidlonghaulers
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

An active 22-year-old man with long COVID was practically bed bound for three months. Low-dose naltrexone, started about six months in, helped a bit, mainly with low-grade fevers, and he gradually built up tasks. He felt 65–70% recovered at ten months, able to walk and attend minor social events, but at 13 months put himself at about 50%, working and doing most activities with difficulty. He reported stomach pain he thought was from LDN.

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Asking aboutBirch 18959’s story

What they tried

Their words about each treatment
  • low dose naltrexone · HelpedStarted LDN in September, and it has helped a bit, but not much, mostly with the daily low grade fevers. In context ↗
  • slowly started to try to build up tasks around the house · Not saidOther than that I just slowly started to try to build up tasks around the house to retract my body now to live. In context ↗
  • low dose Zepbound · No changeDid about 2 months of low dose Zepbound, nothing. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2025 (approx.)Long COVID began; practically bed bound for the first 3 monthsAt my worst I was practically bed bound (first 3 months). In context ↗Severe
January 2026about 65-70% recovered; able to walk and attend minor social eventsI’m about 10 months in and have probably got to about 65-70% recovered. In context ↗MildLow-dose naltrexone
April 2026about 50% recovered; able to get through work and most activities with difficultyI'd say I have recovered around 50%, being able to get through work and most activities, but not in an easy way. In context ↗MildLow-dose naltrexone

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessShakiness, teeth chattering, feeling of weakness In context ↗
  • Heart symptoms & palpitationsHeart racing/palpitations ... chest pain In context ↗
  • Gut problemsNausea ... Stomach pain (think this is LDN) In context ↗
  • Anxiety & low moodTerrible health anxiety ... Adrenaline attacks that feel like a heart attack In context ↗
  • Temperature regulationIntolerance to heat/cold, alcohol and caffeine In context ↗
  • Flu-like symptomsdaily low grade fevers In context ↗

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