Long COVID brain fog and derealisation, somewhat better after gluten-free eating
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Jan 2024
In their words
- Condition: Long COVID
Mine was hardcore dpdr for about 9 months then slight improvement and now kind of plateaued. Still feeling it though, 16 months since contraction.
In context ↗ - At worst: Mild
I cried everyday from fear and anxiety. But I still got up, went to work (am a business owner) and went to the gym every single day
In context ↗ - Now: Somewhat better
For me it has turned from every day being what I would call a struggle day to 3-4 days of struggle followed be 3-4 days of actually feeling ALMOST back to normal.
In context ↗ - Began after: COVID
16 months since contraction
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Summit 52074 developed long COVID about January 2022 and described severe derealisation, brain fog, light sensitivity and vision problems that made every day a struggle. Magnesium oxide, vitamin D3 and ibuprofen, plus sunglasses, left them with three or four bad days followed by three or four almost normal ones. Sixteen months in they had plateaued, and in January 2024 gluten-free eating seemed to reduce their nightmarish brain fog.
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What they tried
Their words about each treatment
- Polarized sunglasses · Helped
I also wear sunglasses almost everywhere I go and for some reason it definitely takes the edge off my symptoms.
In context ↗ - Magnesium oxide · Helped
Magnesium oxide, vitamin D3 and ibuprofen are the 3 things that seem to have helped me the most.
In context ↗ - Ibuprofen · Helped
I might add that ibuprofen also significantly helps all my symptoms.
In context ↗ - Going to the gym every day · Not said
went to the gym every single day no matter how bad i didn’t want to
In context ↗ - Gluten-free diet · Helped
so I made sure on that Sunday that everything I ate was gluten free. Today I felt not great but close to it.
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | long COVID after COVID infection; severe derealisation, brain fog, light sensitivity and vision problems16 months since contractionIn context ↗ | Mild |
| March 2023 | vision and brain fog much better while wearing polarized sunglassesare significantly improved to the point it ALMOST feels as if it isn’t there when I wear polarized sunglassesIn context ↗ | Mild |
| April 2023 | three or four good days a week instead of every day a struggleit has turned from every day being what I would call a struggle day to 3-4 days of struggle followed be 3-4 days of actually feeling ALMOST back to normalIn context ↗ | Mild |
| January 2024 | still having nightmarish brain fog days, apparently triggered by glutenToday I felt not great but close to it. So I think I might be on to something.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
Extreme brain fog, exhaustion, etc.
In context ↗ - Vision problems
my ability to stabilize on objects, identify what something is, see well at night
In context ↗ - Light & noise sensitivity
ALL of my symptoms are dramatically worse in bright light and very low light
In context ↗ - Anxiety & low mood
I cried everyday from fear and anxiety
In context ↗
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