Mild ME/CFS with PEM and dizziness, some progress from pacing but fog persists
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 15 months
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
I'm currently recovering from CFS and, overall, I feel like I've made solid progress.
In context ↗ - At worst: Mild
I'd say I'm generally on the mild part of the CFS spectrum
In context ↗ - Now: Somewhat better
I'm currently recovering from CFS and, overall, I feel like I've made solid progress.
In context ↗ - Began after: stress or burnout
Got ill in December 2024 after a very intense year
Summary
Heron 77077 fell ill in December 2024 after a very intense year and never fully recovered, describing themselves as on the mild part of the CFS spectrum with PEM, dizziness and spaciness. Starting the Paleo diet in July 2025 lowered their energy and brought back dizziness and headaches, which they felt set progress back months. By March 2026 they reported solid progress from better pacing, though cognitive fog and lightheadedness persisted.
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What they tried
What they credit
Also tried
Their words about each treatment
- Paleo diet · Worse
I feel like it has made my energy levels decrease overall and I'm starting to get dizzy and headaches again
In context ↗ - pacing / energy envelope · Helped
I’ve learned how to pace better, I’m managing my energy envelope much more carefully, and most of my bigger symptoms are more predictable now.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2024 | fell ill after a very intense year and never fully recoveredGot ill in December 2024 after a very intense year and classically just never got fully better.In context ↗ | Not stated | |
| 2025-07-22 | Paleo diet lowered energy and brought back dizziness and headachesI feel like it has made my energy levels decrease overall and I'm starting to get dizzy and headaches againIn context ↗ | Mild | |
| 2026-03-02 | solid progress from better pacing; lingering dizziness and spaciness at workI’m currently recovering from CFS and, overall, I feel like I’ve made solid progress.In context ↗ | Mild | Pacing and the energy envelope |
Adverse events
- Elimination diets (other)“it has made my energy levels decrease overall and I'm starting to get dizzy and headaches again” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
am able to go about average day-to-day activities, but will still get some PEM
In context ↗ - Brain fog
It feels more like brain fog crossed with mild dissociation
In context ↗ - POTS & dysautonomia
this lingering dizziness / “spaciness.”
In context ↗ - Headaches & migraine
I'm starting to get dizzy and headaches again (which have been gone for a few months now)
In context ↗
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