ME/CFS
Moderate → no benefit
Moderate ME/CFS with a bad crash, no benefit from LDN
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Sep 2024
In their words
- Condition: ME/CFS
My major symptoms are malaise after physical activity, I became nauseous, muscles burning like lactic acid feeling, and gastroparesis-like symptoms goes worse.
In context ↗ - At worst: Moderate
My baseline is moderate
In context ↗ - Now: No benefit
i had covid on january and it lowered my baseline little bit from what is was last year
In context ↗ - Says they never had: Brain fog
I don’t have any brainfog or cognitive impairment
- Says they never had: Flu-like symptoms
I don’t habe any flu-like symptoms or generalized pain or fever
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user on r/cfs, without a formal diagnosis, described a moderate baseline with malaise after physical activity, burning muscles, nausea, gastroparesis-like symptoms and weakness. A COVID infection in January 2024 lowered their baseline slightly. In late September 2024 they were two weeks into a bad crash of burning leg muscles, nausea and weakness. They were on LDN, which did nothing for them, and had also tested LDA and Mestinon.
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What they tried
Their words about each treatment
- LDN · No change
I’m on LDN but it does nothing for me
In context ↗ - LDA · Not said
I have tested LDA and Mestinon too
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | moderate baseline, ill for an unspecified timeMy baseline is moderate, but this year has been challengingIn context ↗ | Moderate |
| January 2024 | COVID lowered baseline slightlyi had covid on january and it lowered my baseline little bit from what is was last yearIn context ↗ | Moderate |
| 2024-09-25 | two-week crash of burning muscles, nausea and weaknessthis crash what started about two weeks ago, muscles burning especially in the legs, even if im in restIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
My major symptoms are malaise after physical activity
In context ↗ - Gut problems
gastroparesis-like symptoms goes worse
In context ↗ - Muscle weakness
overall weakness
In context ↗ - Pain & fibromyalgia
muscles burning like lactic acid feeling
In context ↗