Bedridden 90% of the time with long COVID, now nearly back to normal after pyridostigmine
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2024
In their words
- Condition: Long COVID
it ended up helping my LC symptoms immediately
In context ↗ - At worst: Severe
Went from 90% bed ridden to maybe 5-10% resting
In context ↗ - Now: Near normal
Went from 90% bed ridden to maybe 5-10% resting
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
A person with long COVID and POTS was bedridden about 90% of the time. Low-dose naltrexone helped a little, but pyridostigmine (Mestinon), prescribed for the POTS, proved the main factor: it helped weakness, fatigue, energy and nearly all long-COVID symptoms immediately, going from 90% bedridden to resting only 5-10% of the time, and they reported being 90% better.
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What they tried
What they credit
Also tried
Their words about each treatment
- mestinon · Helped a lot
I do and mestinon helped me so much. Got 90% better.
In context ↗ - Ldn · Helped
Ldn helped a bit but mestinon has been the mvp.
In context ↗
Approaches: POTS medication
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | bedridden about 90% of the time with long COVIDWent from 90% bed ridden to maybe 5-10% resting.In context ↗ | Severe | |
| 2024-08 | large improvement on mestinonmestinon helped me so much. Got 90% better.In context ↗ | Near normal | Mestinon / pyridostigmine |
| 2024-09 | resting only 5-10% of the timeLdn helped a bit but mestinon has been the mvp. Went from 90% bed ridden to maybe 5-10% resting.In context ↗ | Near normal | Mestinon / pyridostigmine |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
So you have POTS? I do and mestinon helped me so much.
In context ↗ - Muscle weakness
It helped my weakness, fatigue and energy a ton.
In context ↗
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