Bedbound for months with long COVID, now somewhat better; antihistamines, infusions helped
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Mar 2026
In their words
- Condition: Long COVID
I got long covid in january 22, mostly ftigue and brain fog.
In context ↗ - At worst: Severe
Iwas bedbound and could not talk anymore because of thelack of energy.
In context ↗ - Now: Somewhat better
My ftigue was still there butnever as bad as after my 2nd infection,
In context ↗ - Began after: COVID
I got long covid in january 22, mostly ftigue and brain fog.
In context ↗
Read from 52 of their posts and comments; links to the 17 this page draws on
Summary
Shore 34007 fell ill with long COVID in January 2022 with fatigue and brain fog and improved over four months, but a second infection left them bedbound for months and unable to talk from lack of energy, taking over a year to reach about 70% of normal. Antihistamines improved fatigue around December 2023 and Paxlovid kept a third infection from worsening symptoms as much as before. In 2025 a 5 mg medication and infusions helped, with infusions reducing fatigue and PEM.
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What they tried
What they credit
Also tried
Their words about each treatment
- Desloratadin · Helped
I have fatigue and i am taking antihistamines (desloratadin und fanotadin for 2 weeks now and it helped with my fatigue
In context ↗ - Paxlovid · Helped a lot
I took it and I was symptom free after 2 days- it was amazing. After 5 days my long covid fatigue returned
In context ↗ - Famitadin (Pepcid) · Helped
I have been using famitadin 40mg for 2 weeks now and my fatigue also improved!!
In context ↗ - Alcohol · Helped
Yes I can drink like before, even helps me with my fatigue
In context ↗ - Professional Massages · Helped
I forgott about my symptoms and that I am sick and felt only good and relaxes for 90
In context ↗ - L-Arginine · No change
I tried it according to the study,didnt do nything for me
In context ↗ - Methylphenidate (Ritalin) · Helped
Yes! I have tried them multiple times and they helped so much with my Fatigue
In context ↗ - Gabapentin · Helped
It Never stopped it for me neither, but sleep was improved
In context ↗ - Ketamine infusions · Helped
Getting infusions for 4 weeks now and feel less fatigue and PEM.
In context ↗ - Vagus nerve stimulator · Worse
I hat the Same issue as I Startes to high.
In context ↗
Approaches: H1 antihistamines · Antivirals · Stimulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2022 | long COVID onset after first infectionI got long covid in january 22, mostly ftigue and brain fog.In context ↗ | Not stated | |
| 2022, four months in | fatigue and brain fog eased week by weekAfter 4 months it got better and is getting better every week!In context ↗ | Mild | |
| mid-2022 | second infection, bedbound for months and unable to talkIwas bedbound and could not talk anymore because of thelack of energy.In context ↗ | Severe | |
| 2023 | climbed back to about 70% of normalI just recovered from 10% back to 70%In context ↗ | Mild | |
| October 2023 | third infection, symptoms worsened for 2-3 weeks despite PaxlovidAfter 5 days my long covid fatigue returned and my symtoms worsened for 2-3 weeks. After 1 month i felt like before the infection.In context ↗ | Mild | Paxlovid / nirmatrelvir |
| December 2023 | antihistamines improved fatigue, leaving the house dailyI am experiencing with antihistamines (desloratadin and famodatin) and i feel much better than before.In context ↗ | Mild | Famotidine (Pepcid) |
| April 2025 | methylphenidate 5 mg reduced fatigueI am Talking 5mg for 3 days now and I feel so much better!!In context ↗ | Mild | Methylphenidate (Ritalin, Concerta) |
| July 2025 | ketamine infusions reduced fatigue and PEMGetting infusions for 4 weeks now and feel less fatigue and PEM.In context ↗ | Mild | Ketamine |
| September 2025 | still limited; methylphenidate helped but no prescriber foundI have tried them multiple times and they helped so much with my Fatigue, but I Cannot find a doctor thats prescribes them for me :(In context ↗ | Mild |
Adverse events
- Paxlovid / nirmatrelvir“I had no side effects besides a metal taste in my mouth” In context ↗ Side effects
- Famotidine (Pepcid)“I have the feeling that my stochmach hurts from time to time.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I got long covid in january 22, mostly ftigue and brain fog.
In context ↗ - Post-exertional malaise
Getting infusions for 4 weeks now and feel less fatigue and PEM.
In context ↗ - Sleep problems
I took low dosed of it and it helped me mostly with my insomnia
In context ↗ - Anxiety & low mood
It can help with the Fatigue and Depression as well.
In context ↗
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