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Long COVID Mild → no benefitIll for 6 months

Long COVID: breathless on stairs, no improvement from exercise and sleep routine

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
6 months
Last post
Sep 2020
In their words
  • Condition: Long COVIDI’m thankful for my covid experience because it’s highlighting that there must be something underlying In context ↗
  • At worst: MildFormer national-level competitive athlete, now get short of breath and need a break after walking up a flight of stairs. In context ↗
  • Now: No benefitBut I don’t feel even close to perfect. My lungs are “tight”, they don’t inflate the way they used to, my heart feels “heavy”, my energy is super low. In context ↗
  • Began after: COVIDI’m thankful for my covid experience
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A former national-level athlete in Canada, they fell ill with COVID-19 in March 2020; after a 34-day acute phase they were the most fatigued ever, short of breath on stairs. Working remotely and caring for a toddler, they credited light outdoor aerobic exercise with heart-rate monitoring, a sleep and nap routine, and later osteopath manual therapy. Blood tests, chest X-ray, ECG and Lyme testing were normal and they still felt far from well.

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What they tried

Also tried

Their words about each treatment
  • Regular, light, outdoor aerobic exercise · HelpedRegular, light, outdoor aerobic exercise. Even a brisk walk can be tiring, but can feel empowering! In context ↗
  • heart rate monitor (FitBit, Garmin, etc) · HelpedGet a heart rate monitor (FitBit, Garmin, etc). Keep the heart rate below 120-130bpm during exercise. In context ↗
  • Sleep · HelpedI found out through trial and error that sleep is the biggest predictor of my mood and energy the next day. In context ↗
  • Nap · HelpedNap. Max 40 minute nap, no later than 3pm. In context ↗
  • manual therapy treatment from an Osteopath · Helped a lotYesterday I had a manual therapy treatment from an Osteopath and it helped so much! In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2, 2020acute COVID-19 phase beganMy “acute” phase started March 2 and lasted 34 days. In context ↗Not stated
April 2020most fatigued ever coming out of acute phase, short of breath on stairsComing out of that, I was EXHAUSTED. The most fatigued I’ve ever been. In context ↗Mild
2020-08-28back at remote work and childcare, using exercise, sleep and naps to manageRegular, light, outdoor aerobic exercise. Even a brisk walk can be tiring, but can feel empowering! In context ↗MildEveryday exercise and activity
2020-09-17osteopath manual therapy of the ribcage helped a lotYesterday I had a manual therapy treatment from an Osteopath and it helped so much! In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Breathlessnessnow get short of breath and need a break after walking up a flight of stairs In context ↗
  • Muscle weaknessI was EXHAUSTED. The most fatigued I’ve ever been. In context ↗

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