Long COVID with severe brain fog, insomnia and stomach pain, somewhat better after time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 8 months
- Last post
- Aug 2023
In their words
- Condition: Long COVID
And then my LC journey began.
In context ↗ - At worst: Moderate
extreme episodes of Insomnia where I could not sleep for 2-4 days straight
In context ↗ - Now: Somewhat better
I am doing much better than 8 months ago. About 55-60% recovered depending on the day.
In context ↗ - Began after: COVID
On my 3rd or 4th day on my trip I started getting flu or cold like symptoms.
In context ↗ - Says they never had: Breathlessness
No respiratory issues.
Read from 10 of their posts and comments; links to the 6 this page draws on
Summary
Island 38915, a 27-year-old man, caught COVID in December 2022 and developed long COVID with severe brain fog, insomnia, migraines, stomach pain and months without appetite. He stopped working out because exercise and long drives triggered relapses. By eight months he rated himself 55-60% recovered and plateaued, crediting time rather than the supplements and antihistamines that did nothing. Insomnia and stomach problems remained.
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What they tried
What they credit
Also tried
Their words about each treatment
- working out · Worse
I had to stop working out because whenever I workout I still to this day get relapses.
In context ↗ - supplements · No change
I have tried almost all supplements and nothing has helped more so than just time
In context ↗ - bivalent booster · No change
I did get the bivalent booster at month 6 and it had no effect. Did not help, did not hurt.
In context ↗ - Benadryl · No change
Tried 50mg Benadryl for a few weeks did not really notice a noticeable change.
In context ↗ - allegra · No change
I also have tried anithistamines like Benadryl and allegra did not notice any help
In context ↗ - Melatonin · No change
Melatonin does not work for me.
In context ↗ - time · Helped
nothing has helped more so than just time
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| Christmas week 2022 | COVID infection during trip to UtahOn my 3rd or 4th day on my trip I started getting flu or cold like symptoms.In context ↗ | Mild | |
| first months after infection | long COVID: severe brain fog, insomnia, stomach pain, no appetiteI had for a good 6 months extreme brain fog, confusion, delirium, out of body experience, loss of consciousness feelingIn context ↗ | Moderate | |
| during 2023 | relapse after working out or long driveswhenever I workout I still to this day get relapsesIn context ↗ | Moderate | |
| 2023-08-02 | 55% recoveredI am about 55% recovered as of 8 months.In context ↗ | Mild | Time and spontaneous remission |
| 2023-08-28 | plateau at about 60% recoveredI am at almost 8 months and am 60 percent recovered.In context ↗ | Mild | Time and spontaneous remission |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
whenever I workout I still to this day get relapses
In context ↗ - Brain fog
extreme brain fog, confusion, delirium, out of body experience ... I still have this a good amount but definitely not as severe
In context ↗ - Sleep problems
extreme episodes of Insomnia where I could not sleep for 2-4 days straight ... I still deal with this on and off but to a lesser degree
In context ↗ - Headaches & migraine
I had extreme migraines which I never had in my life which felt like a tumor which went on for a couple of months
In context ↗ - Gut problems
extreme extreme dull stomach pains which lasted days on end which I still have but not as extreme
In context ↗ - Temperature regulation
I had a mild fever which went on and off for about 3 months
In context ↗ - Loss of smell or taste
I noticed I lost my taste and smell
In context ↗ - Anxiety & low mood
I always have anxiety of getting reinfected whenever I go out
In context ↗ - Flu-like symptoms
I started getting flu or cold like symptoms. Extremely bad sore and painful throat.
In context ↗
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