Mild ME/CFS with constant fatigue and brain fog; still no energy at home on Modafinil
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- several years
- Last post
- Jul 2023
In their words
- Condition: ME/CFS
I currently have what I would consider mild CFS
In context ↗ - At worst: Mild
I currently have what I would consider mild CFS
In context ↗ - Now: No benefit
I can still work, although the brain fog makes it a bit more difficult some days, but I almost always come straight home and hit the bed.
In context ↗ - Began after: nothing they could name
I was just diagnosed last week after several years of complaining about constant fatigue
In context ↗ - Says they never had: Post-exertional malaise
I don't really recognize any PEM symptoms
Read from 1 of their posts and comments; links to the one this page draws on
Summary
At 41, this Reddit user had had constant fatigue for several years and also reported brain fog and dizziness before being diagnosed with mild CFS in July 2023, while still working full time. Two doses of Adderall were tried before switching to Modafinil, which stopped them falling asleep as soon as they got home, though they still had no energy at home. They did not recognise PEM and wondered whether their mild level was the best or worst their symptoms could get.
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What they tried
Also tried
Their words about each treatment
- Adderall · Not said
after initially trying two different dosages of Adderall
In context ↗ - Modafinil · Helped
Now, I don't fall asleep as soon as I get home, but I also have no energy or motivation to do anything at home
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | onset of constant fatigueI was just diagnosed last week after several years of complaining about constant fatigueIn context ↗ | Mild | |
| 2023-07-15 | on Modafinil, still working full time, brain fog some daysNow, I don't fall asleep as soon as I get home, but I also have no energy or motivation to do anything at homeIn context ↗ | Mild | Modafinil / armodafinil |
Symptoms mentioned
Their words about their symptoms
- Brain fog
the brain fog makes it a bit more difficult some days
In context ↗ - POTS & dysautonomia
I didn't even connect the other issues, like brain fog and dizziness until after I started researching
In context ↗ - Sleep problems
I would sleep as soon as I got home, wake up for about an hour, eat supper, and go back to sleep for the night
In context ↗