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ME/CFS Mild → no benefit

Mild ME/CFS with constant fatigue and brain fog; still no energy at home on Modafinil

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
several years
Last post
Jul 2023
In their words
  • Condition: ME/CFSI currently have what I would consider mild CFS In context ↗
  • At worst: MildI currently have what I would consider mild CFS In context ↗
  • Now: No benefitI can still work, although the brain fog makes it a bit more difficult some days, but I almost always come straight home and hit the bed. In context ↗
  • Began after: nothing they could nameI was just diagnosed last week after several years of complaining about constant fatigue In context ↗
  • Says they never had: Post-exertional malaiseI don't really recognize any PEM symptoms
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

At 41, this Reddit user had had constant fatigue for several years and also reported brain fog and dizziness before being diagnosed with mild CFS in July 2023, while still working full time. Two doses of Adderall were tried before switching to Modafinil, which stopped them falling asleep as soon as they got home, though they still had no energy at home. They did not recognise PEM and wondered whether their mild level was the best or worst their symptoms could get.

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What they tried

Their words about each treatment
  • Adderall · Not saidafter initially trying two different dosages of Adderall In context ↗
  • Modafinil · HelpedNow, I don't fall asleep as soon as I get home, but I also have no energy or motivation to do anything at home In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetonset of constant fatigueI was just diagnosed last week after several years of complaining about constant fatigue In context ↗Mild
2023-07-15on Modafinil, still working full time, brain fog some daysNow, I don't fall asleep as soon as I get home, but I also have no energy or motivation to do anything at home In context ↗MildModafinil / armodafinil

Symptoms mentioned

Their words about their symptoms
  • Brain fogthe brain fog makes it a bit more difficult some days In context ↗
  • POTS & dysautonomiaI didn't even connect the other issues, like brain fog and dizziness until after I started researching In context ↗
  • Sleep problemsI would sleep as soon as I got home, wake up for about an hour, eat supper, and go back to sleep for the night In context ↗

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