ME/CFS
Severe → relapsedIll 2 years before improving or writing
ME/CFS after COVID too weak to stand at times, then faded and relapsed
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Dec 2025
In their words
- Condition: ME/CFS
Is this sounds like cfs?
In context ↗ - At worst: Severe
I couldn’t go out, work , nothing. ... I just slept and slept all the time.
In context ↗ - Now: Relapsed
Until it faded away. ... now again my period ended and again all over night sweats every, fatigue head pressure, dizziness.
In context ↗ - Began after: COVID
on December 2023 i had covid took it badly also i was on my period the same time.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Hare 95754 fell ill after COVID in December 2023 and over the following months became too weak to stand at times, slept up to 20 hours a day and could not go out or work; tests and specialist visits found nothing. The illness faded away, but after two bouts of flu in one month and her period she relapsed in late 2025 with night sweats, head pressure, dizziness and 17-hour sleep.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2023 | COVID infection, ill and exhaustedI was super tired heart palpitations and really just a mess.In context ↗ | Moderate |
| 2024 | bedbound months, sleeping up to 20 hours a dayI couldn’t go out, work , nothing.In context ↗ | Severe |
| — | illness faded awayUntil it faded away.In context ↗ | Recovered |
| December 2025 | relapse after two bouts of flu in one month and her periodSleeping for 17 hours!!In context ↗ | Severe |
Symptoms mentioned
Anxiety & low moodBrain fogHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityMuscle weaknessPOTS & dysautonomiaSleep problemsTemperature regulation
Their words about their symptoms
- Sleep problems
Sleeping for 17 hours!!
In context ↗ - Temperature regulation
Having sever night sweats every night
In context ↗ - Brain fog
Brain fog sever dizziness head pressure
In context ↗ - POTS & dysautonomia
sever dizziness
In context ↗ - Heart symptoms & palpitations
I was super tired heart palpitations
In context ↗ - Light & noise sensitivity
Sensitivity to lights sounds
In context ↗ - Muscle weakness
My muscles felt like jelly, so weak that sometimes i struggled to stand up
In context ↗ - Anxiety & low mood
Really bad mood.
In context ↗