POTS and crippling anxiety after long COVID, somewhat better with time and a diagnosis
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 9 months
- Last post
- Nov 2022
In their words
- Condition: Long COVID
I caught Covid in Febuary of this year and this is the worst it’s ever been.
In context ↗ - At worst: Moderate
Showers destroy me for the day and it feels like an anvil is put on my chest the day after exercise.
In context ↗ - Now: Somewhat better
I’m getting better! 8 months later.
In context ↗ - Began after: COVID
I caught Covid in Febuary of this year
In context ↗
Read from 14 of their posts and comments; links to the 8 this page draws on
Summary
Man under 25 with POTS in remission since 2018 caught COVID in February 2022; it returned worse than ever with crippling anxiety, and he spent two months in psychiatric residential care. Over months he improved, crediting time and a diagnosis that helped him recover. A blood donation in July 2022 set his heart rate back temporarily. By November 2022 heart symptoms had mostly gone, with occasional flares.
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What they tried
What they credit
Also tried
Their words about each treatment
- physical therapy · Helped a lot
before physical therapy and medications were successful
In context ↗ - psychiatric residential · Not said
I ended up psychiatric residential for 2 months and with time I’m finally coming out of it.
In context ↗ - fluids and electrolytes, compression socks · Helped
Keep a crazy amount of fluids and electrolytes on hand and use compression socks.
In context ↗ - healthy amounts of sleep · Helped
healthy amounts of sleep helps the Tachycardia
In context ↗ - endoscopy · Helped
I got one done and I was able to get a diagnosis that helped me recover!!
In context ↗ - swimming · Helped
Can confirm. Especially in colder pools
In context ↗
Approaches: Physiotherapy and rehab
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| February 2022 | caught COVID-19; POTS returnedI caught Covid in Febuary of this yearIn context ↗ | Moderate |
| 2022-06-21 | severe anxiety, could not be alone, suicidal, two months psychiatric residentialIt got to the point of considering suicide because I was so desperate just to *function* again.In context ↗ | Moderate |
| mid-July 2022 | partial remission of POTSWas feeling pretty good last week and was even in partial remission.In context ↗ | Mild |
| 2022-07-22 | crashed after donating a unit of bloodA unit of blood taken later and my resting heart rate is in the 90s and standing gets me to 130.In context ↗ | Moderate |
| 2022-08-21 | endoscopy gave a diagnosis that helped him recover; heart-rate/pressure symptom fadedI was able to get a diagnosis that helped me recover!!In context ↗ | Mild |
| 2022-10-09 | continued gradual improvement over timeI’m getting better! 8 months later.In context ↗ | Mild |
| 2022-11-04 | heart symptoms mostly gone, occasional flaresMy bradycardia kinda flares in and out now and is mostly gone.In context ↗ | Mild |
Adverse events
- “The worst part was that I had a panic attack before the anesthetic and felt a like drunk after.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I’m getting better! 8 months later. My pots before Covid took 2 years
In context ↗ - Anxiety & low mood
My anxiety nosedived after Covid to the point where I could not be alone.
In context ↗ - Heart symptoms & palpitations
Pvcs are increased too
In context ↗ - Breathlessness
It’s like I’m not breathing deeply automatically. I just breath super shallow.
In context ↗ - Temperature regulation
Now my sweating is completely thrown off, it’s way too much on my feet and palms.
In context ↗ - Post-exertional malaise
Showers destroy me for the day and it feels like an anvil is put on my chest the day after exercise.
In context ↗
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