Long COVID with lung scarring and exercise setbacks, no improvement after vaccines
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3.5 years
- Last post
- Sep 2023
In their words
- Condition: Long COVID
Other long haul symptoms as well.
In context ↗ - At worst: Mild
I try to exercise every day as much as I can, and yet when I overdo it, I have a setback with long haul symptoms.
In context ↗ - Now: No benefit
I have lung scarring and issues from Covid.
In context ↗ - Began after: COVID
a very early, spring of 2020, undiagnosed case of Covid
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Dates onset to an undiagnosed case of COVID-19 in spring 2020, followed by lung issues and other long-haul symptoms; overdoing exercise brought setbacks. A Cleveland Clinic pulmonologist linked major flare-ups to each vaccine and booster and advised against further boosters; they had an early Moderna vaccine and all boosters. Recurring symptoms persisted after a booster, and by September 2023 lung scarring and issues from COVID remained after three COVID infections.
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What they tried
Their words about each treatment
- Covid vaccines and boosters · Worse
I had my first extreme long Covid symptoms after my first vaccine. Felt fine after the second dose.
In context ↗ - prednisone · Not said
I’m on prednisone
In context ↗ - daily exercise · Worse
I try to exercise every day as much as I can, and yet when I overdo it, I have a setback with long haul symptoms.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| spring 2020 | undiagnosed COVID-19; lung issues beginI had begun having lung issues after what I believe was a very early, spring of 2020, undiagnosed case of Covid.In context ↗ | Not stated |
| 2021 | first extreme long-haul symptoms after first Moderna vaccineI had my first extreme long Covid symptoms after my first vaccine.In context ↗ | Mild |
| fall 2021 | booster; recurring symptoms came back and stayedI had my booster this fall, and many of the recurring symptoms are still with me.In context ↗ | Mild |
| 2023-09-21 | still has recurring symptoms and lung scarring; doctor advised against more boostersIt does worry me because I have lung scarring and issues from Covid.In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“I had my booster this fall, and many of the recurring symptoms are still with me.” In context ↗ Autoimmune or inflammatory flare
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
when I overdo it, I have a setback with long haul symptoms
In context ↗ - Breathlessness
I have lung scarring and issues from Covid
In context ↗