ME/CFS
Severe → no benefitIll for 15 years
Bedbound with ME/CFS for 15 years, no improvement from atenolol or propranolol
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 15 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I did already have CFS when I last tried various ones.
In context ↗ - At worst: Severe
I only figured it out after it got so severe that I was practically bedridden 24/7
In context ↗ - Now: No benefit
I've been bed bound for 15 years ... Nothing really works, though.
- Began after: stress or burnout
I'm convinced I ended up getting sick like this thanks 2 my brother. He screwed me over BIG TIME, causing me constant stress and trauma for years.
Read from 12 of their posts and comments; links to the 9 this page draws on
Summary
Breeze 55060 had ME/CFS before long-term stress and trauma left them bedbound for the past 15 years. Atenolol and propranolol lowered their heart rate but did nothing for the CFS, and Cymbalta helped energy somewhat at the cost of nightly nightmares. B12 complex, NAC and activated charcoal gave no noticeable improvement, and they remained bedbound with no money for supplements.
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What they tried
Also tried
Their words about each treatment
- tanning bed · Helped
I didn't realize why I seemed to feel better when I tanned.
In context ↗ - Atenolol · No change
Neither helped my CFS symptoms, or anything about the way I felt. But they both did keep my heart rate down.
In context ↗ - my meds · Helped
I can't function whatsoever without it, after having taken it for 15+yrs.
In context ↗ - Propanolol · No change
Neither helped my CFS symptoms, or anything about the way I felt.
In context ↗ - Cymbalta · Worse
I do recall Cymbalta seeming to help my energy somewhat, but there was a side effect that made it unbearable. I wanna say it was crazy scary nightmares every time I went to sleep.
In context ↗ - CoQ10 · No change
I got a bottle a few mts ago & took it some, but not every day. I couldn't tell any difference
In context ↗ - b12 complex · No change
Haven't noticed a diff taking it (even when I took it every day)
In context ↗ - the app · Not said
I tried using the app just with my phone awhile back and stopped using it for a long time. I didn't like how it seemed to take your rating on quality of sleep into account for your body battery.
In context ↗ - Cucurmin · Helped
I asked AI why I felt a tiny improvement when I had Cucurmin
In context ↗ - NAC · No change
I finally managed to get some NAC and activated charcoal a few mts ago but I've noticed no improvement.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | already had ME/CFS before the long-term stress, not so badly off thenI'm pretty sure I already had it before the long term stress/trauma but at least I wasn't so bad off back then.In context ↗ | Mild |
| — | became bedridden after years of stress and trauma at homeafter the "trauma" I became bedridden.In context ↗ | Severe |
| 2026-10-20 | still bedbound 15 years on; NAC and activated charcoal gave no improvementI've been bed bound for 15 years. I finally managed to get some NAC and activated charcoal a few mts ago but I've noticed no improvement.In context ↗ | Severe |
Adverse events
- Duloxetine (Cymbalta)“I do recall Cymbalta seeming to help my energy somewhat, but there was a side effect that made it unbearable. I wanna say it was crazy scary nightmares every time I went to sleep.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I don't have officially diagnosed POTS or dysautonomia, but I have no doubt that I have both
In context ↗ - Anxiety & low mood
just in hopes it may help my anxiety a little
In context ↗ - Post-exertional malaise
I've already pushed myself too hard typing all this.
In context ↗