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ME/CFS Outcome unclear

Joints bad from hypermobility, slopes hard, now using a portable mobility scooter

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
Sep 2026
In their words
  • At worst: Severethe one time a month I’m using it for a restaurant and need to leave it at the front of the dining area In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Harbor 89512 uses a Superhandy portable mobility scooter for occasional restaurant outings, finding it comfortable and easy to use. The scooter weighs 35 lb, or under 30 lb with the seat and battery removed, and they cannot lift it themselves. Hypermobility makes their joints, especially in their hands, bad enough that downward slopes are difficult, and the scooter has only a hand brake. They added an alarm and pull the battery out slightly as security measures. They give no account of their ME/CFS onset, symptoms or course.

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Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiamy joints are also bad (hypermobility) esp in my hands In context ↗

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Asking aboutHarbor 89512’s story

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