Miruvor
ME/CFS Severe → relapsedBenefit faded or relapsed

Anyone improve from bed/housebound to high level of functionality?

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
onset 1982, worsening for first 3 years
Published
Oct 2011

Summary

Mostly bedridden (occasionally a little more functional) for years after a 1982 onset, she did colonic irrigation, acupuncture and Chinese herbs from 1986-1988 and rose to near-normal activity with only mild symptoms, holding that level for about 15 years (1988-2003) - elsewhere describing the same period as "95% well for about 12 years." She hedges "it's impossible to say whether these led to my improvement." The remission ended in 2003 when a skiing accident triggered fibromyalgia, and in a later post she says she is now "quite a lot worse than I was in the 1980s."

Read it in their words

forums.phoenixrising.me

What they credit

Credits Craniocervical surgery, Alternative therapies, Herbal and Chinese medicine.

Symptoms mentioned

Symptoms: Pain & fibromyalgia.

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