How it went
Did it last?
- 11 of 44 said the benefit wore off (including the 5 who relapsed).
- 2 of 44 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 15 | 34% |
| Near-full | 5 | 11% |
| Substantial | 12 | 27% |
| Partial | 7 | 16% |
| Relapsed | 5 | 11% |
| No benefit | 0 | 0% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 5 | 40% | |
| Severe | 20 | 50% | |
| Very severe | 10 | 60% |
9 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
Specific treatments in these accounts
- TreatmentHow it wentRecoveredFaded
- Craniocervical fusion / tethered cord16 accounts
50% 12%
- Vaccines used as treatment (BCG, staph toxoid, JE)6 accounts
17% 33%
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)6 accounts
83% 0%
- Meditation, yoga, breathwork4 accounts
50% 0%
- Mestinon / pyridostigmine3 accounts
33% 0%
- Herbal and Chinese medicine3 accounts
33% 33%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
All 44 accounts
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Case Report: mitochondrial insufficiency and cholinergic failure in post-vaccination LC
This 80-year-old professor was given Mestinon (pyridostigmine bromide) 90 mg daily for balance problems, which brought minimal benefit over two months, and then a mitochondrial support protocol targeting NAD+ repletion, electron transport chain function and…
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Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid
Credits brain retraining and community. Zsuzsa was ill 1 year bedbound (2022-23) with severe ME/CFS and reports a substantial improvement. Post-vaccination onset, not post-covid.
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120: Got Sick After the Booster — This Brought Her Back (Juliet Marie Stein)
Credits brain retraining. Juliet had ME/CFS and is described as fully recovered. Post-vaccination onset, not post-infection LC.
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Caitlan's 1-2 punch works with her severe ME/CFS
Caitlan was a healthy personal trainer who became bedbound after a vaccination followed by a stomach bug, developing severe neurological and cardiovascular ME/CFS symptoms. She tried IV therapy, hyperbaric oxygen and stem cells without lasting success. She…
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This surgery fuses people's skulls to their spines to treat ME-overlapping condition
Jen Brea underwent craniocervical fusion performed by Dr. Paolo Bolognese, using two 2.5-centimeter titanium bars and six screws to fuse her top two vertebrae to her skull and lift her head by 4 millimeters, followed about two weeks later by tethered cord…
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One of the most effective ME/CFS treatments, the Staphylococcus toxoid vaccine, discontinued in 2005, is available once again from a new source
Self-injected the Russian adsorbed Staphylococcus toxoid vaccine into the abdomen for moderate ME/CFS. Reports it "put me into near remission," with "incredible mental clarity and mental energy... mind was sharper than it was even when I was healthy." States…
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The Nicotine Patch: Long COVID, ME/CFS and Fibromyalgia (Patient 3)
This third case-series patient accidentally used a doubled nicotine-patch dose, about 15 mg/24h, in a single application before stopping due to severe vomiting and diarrhea from the overdose. Despite the adverse reaction, her fatigue disappeared by day four.…
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Three Severely Ill Long COVID Patients - Three Rapid Recoveries (patient 2)
This patient fell ill with severe long COVID in early 2021, with profound cognitive difficulty and extreme exercise intolerance, and gained only mild relief from vaccination. More than six months later, after testing positive for COVID again, she received…
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Three Severely Ill Long COVID Patients - Three Rapid Recoveries (patient 1)
This patient developed severe long COVID after a confirmed infection, unable to climb stairs or walk without severe fatigue and with neurological and cardiac symptoms, gaining only mild relief from vaccination. About a year after infection she received the…
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Japanese Encephalitis Vaccine article comments (Rebecca)
Rebecca took a first dose of the oral, live-attenuated typhoid vaccine (Vivotif). Rather than the post-vaccine malaise she expected, she reported feeling "amazing" and "1,000% better." The page gives no detail on her prior illness severity or duration, or…
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Adam's BCG Vaccination Chronic Fatigue Syndrome (ME/CFS) Recovery Story
Liver derivative complex (Nexavir), given as 2ml per day by subcutaneous injection alongside hydroxocobalamin 10mg intramuscularly twice weekly, was used for about two years. He had been severely ill with ME/CFS for over two decades, at times unable to work…
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Japanese Encephalitis Vaccine article comments (Li Ho's daughter)
Li Ho's daughter, as the commenter is identified, received a Johnson & Johnson COVID-19 vaccine while she had post-infection POTS with MCAS symptoms. The shot was followed by an eight-month remission in which she could exercise as she liked and eat foods…
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Japanese Encephalitis Vaccine article comments (Suzanne)
Suzanne received the Shingrix vaccine about a month before her comment and subsequently added acyclovir. She said she was "still coasting on the huge improvement" the Shingrix vaccine gave her, though the page gives no specifics on her prior illness severity…
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Two Years Later: Bruce Patterson, Long COVID and the Poll (Kate)
Kate Porter was treated with Bruce Patterson's protocol of maraviroc and pravastatin, which she calls a "game changer" that let her exercise again and gave her life back. A COVID reinfection after vaccination later worsened her symptoms, but going back on…
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Two Years Later: Bruce Patterson, Long COVID and the Poll (Amy)
Amy was treated with Bruce Patterson's protocol of maraviroc and pravastatin and improved roughly 80 percent over four months, becoming able to work full-time fairly comfortably again and even taking a hiking trip. A stressful week, a near-fatal car accident…
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Can the Japanese Encephalitis Vaccine Reduce Symptoms of Long COVID?
Rachel Strohm received a first dose of the Japanese Encephalitis vaccine (Ixiaro) in April 2022, along with meningitis, typhoid and Tdap boosters, followed by a second JEV dose a week later. She had been ill with long COVID for about four months, reaching a…
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The Mechanical Basis of ME
Jeff Wood became severely bedridden with post-viral ME around 2015 and, after two years developing his "Mechanical Paradigm" theory that connective-tissue problems underlie some ME cases, reported achieving full remission. The 2022 article confirms his…
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Bring It On!
Helen manages her long COVID with about 8 unnamed tablets each morning plus more through the day, along with increased fluid and salt intake, supine exercises, and heart rate monitoring for POTS — no specific drug names or doses are given. She had a mild…
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Mallory's Dangerous Spinal Treatments Eventually Work
Mallory had ME/CFS with several comorbid conditions and was mostly bedbound for around nine years. He pursued two experimental spine treatments: GHK-Cu peptide injections to stabilise his spine, and frequency specific microcurrent for a tethered cord, which…
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Some Patients Are Reporting Recovery from Long COVID (Sherri)
Sherri Klipowicz used a plant-heavy, low-gluten, low-dairy diet, restorative yoga, magnesium and glutathione supplements, and ozone therapy, and worked with an insomnia specialist to fix her sleep. She had been sick with Long COVID since March 2020, and…
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Some Patients Are Reporting Recovery from Long COVID (Netta)
Netta Wang's recovery followed her second Moderna vaccine dose in March, combined with doctor-recommended exercise such as bike riding to gradually rebuild her strength. She had been sick with Long COVID since August 2020 and was initially nervous to…
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Some Patients Are Reporting Recovery from Long COVID
Lana Lynch's Long COVID symptoms improved after her second dose of the Pfizer-BioNTech COVID-19 vaccine in May, the only treatment named in the article. Before that she had months of fatigue and daily headaches and had to carefully ration her exertion.…
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ME/CFS in remission from Mold Avoidance
Despite comorbid craniocervical instability, mold avoidance "still helped" and affected symptoms like sound sensitivity and POTS, which he calls "the most impressive [treatment] I've done YET." He says he never achieved full remission from mold avoidance…
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Craniocervical Instability, Neurosurgery and M.E.: Just the Facts, Please - An Editorial by Jeff Wood
After years bedridden with severe ME and a craniocervical instability diagnosis confirmed with objective structural testing, Jeff Wood had skull-to-C2 fusion surgery in January 2018, followed by a second neurosurgery to release a tethered spinal cord. He…
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List of ME/CFS Recovery and Improvement Stories
jeff_w is listed reaching remission from severe ME/CFS following craniocervical instability fusion surgery, per the compiled list.
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Health Update #4: Recovery is a %*#*&$@!
Jennifer Brea had been managing severe ME for about 8 years with Valcyte, Valtrex, Mestinon, and fludrocortisone plus mold avoidance, which had only brought her from severe to moderate; in November 2018 she underwent three surgeries over six weeks — a…
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Twitter status re: Karen
Index entry (relayed by JenB) credits Karen with CCI fusion surgery for ME/CFS improvement. Twitter/X content could not be fetched, so no further detail on duration of illness, severity, or durability beyond the index claim is available.
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Jennifer Brea's Recovering Story: the Spinal Series Pt II (Mattie)
The same post describes Mattie, a web developer in the Netherlands whose ME/CFS began in 2010 with a gradual decline to being mostly bedridden. Three months after craniocervical and atlantoaxial fusion surgery she was no longer mostly bedridden and her POTS,…
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Jennifer Brea's Chronic Fatigue (ME/CFS) Recovering Story
Underwent spinal surgeries over several weeks to correct craniocervical instability (CCI) and tethered cord syndrome, wore a neck collar (Philadelphia or Aspen Vista) during recovery, and found the drug Mestinon (pyridostigmine) helpful for symptoms. She had…
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Could Craniocervical Instability Be Causing ME/CFS? (Jennifer)
The same post introduces filmmaker Jennifer Brea, describing severe neurological decline including respiratory-arrest episodes after a surgery-triggered relapse, leading to a diagnosis of craniocervical and atlantoaxial instability. She underwent…
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Could Craniocervical Instability Be Causing ME/CFS, Fibromyalgia and POTS? (Jeff)
Jeff was young, healthy and active before a viral infection with high fever triggered symptoms that progressed until he was bedbound, unable to chew food, and diagnosed with ME/CFS, POTS and mast cell activation syndrome. Years into his decline he learned he…
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Monet finds relief from mind/body practices plus homeopathy
Monet developed ME/CFS and fibromyalgia after a reaction to a vaccination, becoming wheelchair-bound within nine months and mostly bedbound for over a decade. She pursued homeopathy, dietary change, herbal supplements and extensive spiritual and…
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Carl-Gerhard Gottfries: A Swedish ME/CFS Vaccine Treatment Success Story
Carl-Gerhard Gottfries, a Swedish psychiatrist, developed prolonged post-infectious fatigue after the 1957-58 Asian Flu epidemic and eventually became bedridden and unable to work. His fatigue resolved and he resumed full psychiatric practice after starting…
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Carl-Gerhard Gottfries: A Swedish ME/CFS Vaccine Treatment Success Story
Credits vaccine and staphylococcus toxoid. An unnamed patient had ME/CFS and reports a substantial improvement. Named for the treating Swedish physician-researcher.
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Hitting Rock Bottom Leads To Turnaround for Dan
Dan developed ME/CFS after a chickenpox vaccination during an intensely stressful period, and over six and a half mostly homebound years suffered extreme fatigue, bouts of fever, cardiac issues and brain fog. He attributes his recovery to addressing…
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Multidimensional program is the ticket for Michelle
Tai chi and qigong practice, described as vital for immune function, balance and heart functioning, was one element of a long-term multidimensional program that also included an elimination diet (no dairy, most grains, fermented foods, alcohol, MSG, sugar or…
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Liz Dyde's Mind-Body Connection in Fibromyalgia
Credits mind body and brain retraining. Liz had ME/CFS and is described as fully recovered. Practitioner interview; recovery called accidental.
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Update from Michael Snyderman, MD
Dr. Snyderman, who developed CFS about a decade after an oral polio vaccine and later CLL, started AZT plus raltegravir 571 days after his CLL diagnosis and improved for about 9.4 months, with falling cytokine markers and better fatigue, concentration and…
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Anyone improve from bed/housebound to high level of functionality?
Mostly bedridden (occasionally a little more functional) for years after a 1982 onset, she did colonic irrigation, acupuncture and Chinese herbs from 1986-1988 and rose to near-normal activity with only mild symptoms, holding that level for about 15 years…
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List of ME/CFS Recovery and Improvement Stories
Danielle is listed reaching remission from severe ME/CFS after the same combination of craniocervical fusion and tethered-cord surgery, per the compiled list.
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List of ME/CFS Recovery and Improvement Stories
JenB is listed as cured of severe ME/CFS by a combination of craniocervical fusion and tethered-cord surgery, per the compiled list.
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Jen Brea Talking to GMT News
Index entries credit JenB first with Valcyte (antiviral) for some improvement, and later, more substantially, with CCI/AAI fusion plus tethered-cord surgery (detailed on her own Medium blog, not fetched here) after she was found to have spinal instability.…
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Elizabeth's Story: From Chronic Fatigue to a Full Joyful Life
Credits brain retraining. Elizabeth was ill 9y with severe ME/CFS and is described as fully recovered. 9-year CFS post-accident, now symptom-free.
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My Story of Craniocervical Instability, ME/CFS, and Tethered Cord
Jeff Wood's treatment progressed from a Philadelphia cervical collar (worn over a month) to a halo brace with four skull screws (worn several months) to skull-to-C2 fusion surgery in early 2018, guided by a dynamic CT scan with flexion and extension views;…