Bedbound two years with ME/CFS, now near normal; Dr Brooke Goldner diet protocol helped
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- 9 months
- Last post
- May 2026
In their words
- Condition: ME/CFS
I was very severe decades ago I was bed bound for about 2 years
In context ↗ - At worst: Very severe
At my worst I slept for 20 hours a day.
In context ↗ - Now: Near normal
Then when I got Covid again I world start up again and have had more or less normal recovery since.
In context ↗
Summary
Bluebell 14952 was very severely ill decades ago, bedbound two years and sleeping 20 hours daily, then recovered to a dream job and long walks. After COVID they had long COVID and could not breathe; after nine months a Dr Brooke Goldner diet protocol helped within six weeks, enough to snorkel kilometres. Later COVID infections brought near-normal recovery, but omega-3 pills briefly worsened their omega balance.
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What they tried
What they credit
Also tried
Their words about each treatment
- walking · Helped
At first I was wrecked but over time I was ablecto build up and include more steps by walking around the office more etc. ... It took a while but over time out really helped.
In context ↗ - stopping animal products · Not said
I stopped eating animal products. They are very inflammatory.
In context ↗ - B12 · Not said
I started taking B12 and worked with a holistic doctor to see what other types of supplements might help.
In context ↗ - methlyfolate · Worse
I tried methlyfolate but it would make me vomit.
In context ↗ - B6 · Much worse
the same doctor also prescribed me with B6 which took a couple of years out of my lifeand nearly killed me
In context ↗ - Dr Gregors Daily Dozen · Not said
I stumbled on Dr Gregors Daily Dozen. It's a free app based on his research etc.
In context ↗ - Dr Brooke Goldner protocol · Helped a lot
Eventually after 9 months I found Dr Brooke Goldner. She healed me within 6 weeks.
In context ↗ - personalised nutrition based on genes · Helped
I found that I need to eat a lot of methlyfolate, choline and B2 in my diet. When I do that I feel really good.
In context ↗ - Omega 3 pills · Worse
I started popping Omega 3 pills before I got testing back and within a short time I stuffed myself up because I was taking the wrong thing.
In context ↗ - vit D · Not said
I only normally take B12 and vit D in winter.
In context ↗
Approaches: Diet · Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| decades ago | became very severeI was very severe decades agoIn context ↗ | Very severe |
| for about 2 years | bedbound and very limited movement; slept 20 hours a dayI was bed bound for about 2 years ... At my worst I slept for 20 hours a day.In context ↗ | Very severe |
| eventually | recovered to dream life and dream job; long walks, fun runs, yogaI eventually recovered to where I was living my dream life with my dream job.In context ↗ | Near normal |
| Eventually I got Covid | COVID; long COVID, could not breatheI had long covid ... I couldn't breath.In context ↗ | Severe |
| after 9 months, within 6 weeks | Dr Brooke Goldner diet protocol; healed within six weeks; snorkelled kilometresI went from not being able to breath to snorkelling kms around the Great Barrier reef on that time.In context ↗ | Near normal |
| Then when I got Covid again | COVID reinfection; restarted protocolThen when I got Covid again I world start up again and have had more or less normal recovery since.In context ↗ | Not stated |
| more recently | omega-3 pills worsened omega balanceI started popping Omega 3 pills before I got testing back and within a short time I stuffed myself upIn context ↗ | Not stated |
| 2026-05-24 | back on track; more or less normal recovery; rebuilding walkingAnyhow I'm now back on track and am reversing course.In context ↗ | Near normal |
Adverse events
- Methylfolate (L-methylfolate, 5-MTHF)“I tried methlyfolate but it would make me vomit.” In context ↗ Gut side effects
- Vitamin B6 (pyridoxine, P5P)“prescribed me with B6 which took a couple of years out of my lifeand nearly killed me” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
At my worst I slept for 20 hours a day.
In context ↗ - Breathlessness
I couldn't breath.
In context ↗
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