Miruvor
Sign up
Long COVID Moderate → much betterIll 5 years before improving or writingNeeds ongoing treatment

Severe long COVID at 30% activity, now exercising again after naltrexone and pacing

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
5 years
Last post
Dec 2025
In their words
  • Condition: Long COVIDI (otherwise healthy 35m) got Covid July 2020, got better for a bit then extremely severe long Covid starting November 2020. In context ↗
  • At worst: ModerateAt my worst I was maybe at 30% of my total life functionality, I'm at maybe 50% now. In context ↗
  • Now: Much betterworking out for about 35 minutes at about 50%/+ the intensity I did pre-COVID - and not only doing it, but not feeling horrible after. In context ↗
  • Began after: COVIDI got it at the end of June 2020, had the worst headache of my life In context ↗
Read from 41 of their posts and comments; links to the 24 this page draws on

Request to remove this story

Summary

Badger 10938 caught COVID in July 2020 and developed severe long COVID that November, leaving him at about 30% of previous activity with headaches, brain fog, nausea and mood swings. A January 2022 reinfection reset him to his lowest; a third infection in 2024 did not worsen symptoms. Intermittent Paxlovid gave steep but fading gains; by late 2025 low-dose naltrexone, a low-FODMAP diet, pacing and time had him exercising again, until a pneumococcal vaccine triggered a bad flare.

Ask Miruvor AI

Asking aboutBadger 10938’s story

What they tried

Their words about each treatment
  • working out 4 days a week · Not saidStarted working out 4 days a week, getting better ... Then I crashed hard at end of October 2020 In context ↗
  • cold plunge · HelpedI have a lot of success with cold plunge. In context ↗
  • Wim Hof breathing · HelpedOne thing that helps is the wim hof In context ↗
  • Tylenol · Not saidSimilar or better to Tylenol and caffeine (and no downsides or side effects) In context ↗
  • caffeine (coffee) · Helpedthe coffee helps me wake up from it and get back to work In context ↗
  • therapy session (grief / mock funeral suggestion) · No changeShe suggested a mock funeral ... Anyway it didn't help me In context ↗
  • SSRI (first zoloft, now welbutrin) · Helpedthe SSRI (first zoloft, now welbutrin - less side effects for me personally) somewhat calmed the most extreme ups and downs In context ↗
  • Paxlovid · Helped a lotmy LC symptoms are SIGNIFICANTLY improved -the steepest improvement I've ever had In context ↗
  • metformin · Not saidTook Paxlovid and metofrmin 5 days In context ↗
  • fluvoxamine · Worsea very serious psychoactive drug and made me feel absolutely insane. I discontinued it In context ↗
  • 3 months of no sugar, no caffeine, no alcohol · No changeIt didn't help more than heavy limitation of alcohol and sugar, and once daily caffeine. In context ↗
  • intermittent fasting · HelpedI did intermittent fasting down to a close to ideal weight ... and I felt better during, although it was emotionally miserable In context ↗
  • fiber drink and green juice routine · HelpedIt definitely helps. In context ↗
  • vyvanse · Worselike vyvanse, or migraine medicine, etc etc - they let me do more, but then I have to pay the piper and can be worse after In context ↗
  • digestive enzymes · Not saidI take digestive enzymes for something like pizza In context ↗
  • Low Dose Naltrexone · HelpedI don't know if it's the Low Dose Naltrexone I started about 5 months ago, or a low FODMAP diet same time, or time and pacing better, or all three In context ↗
  • low FODMAP diet · Helpedor a low FODMAP diet same time, or time and pacing better, or all three In context ↗
  • pacing · HelpedPacing is key to chronic fatigue. In context ↗
  • time and rest · Helpedthe only thing I know for sure that is helpful for me istime and rest In context ↗
  • COVID vaccination as treatment · Not saidI know I didn't (other than a 1-2 day flu like) In context ↗

Approaches: Antivirals · Diet · Pacing

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
July 2020COVID-19 infection with the worst headache of his life, then a slow mono-like recoveryI got it at the end of June 2020, had the worst headache of my life In context ↗Mild
November 2020crashed into severe long COVID after extra exercisethen from extra exercise or just inevitability, severe Long Covid set in Nov 1, 2020 In context ↗Moderate
2021slow improvement over about a yeargot a little better over a year, significantly better (maybe 50% improvement, still greatly diminshed) until Jan 2022 In context ↗ModerateTime and spontaneous remission
January 2022reinfection reset him to his lowest with new nausea and motion sicknessgot reinfected Jan 2022 and got totally reset to my lowest plus some new symptoms like motion, sickness and more nausea In context ↗Moderate
April 2024slow recovery to about 30% of his old activity, still not enoughI feel like I'm maybe 60% recovered. But then when I think of how much I actually do in life, it's about 30% of what I did before. In context ↗MildTime and spontaneous remission
July 2024third infection treated early with Paxlovid; near-normal for a few daysI felt almost normal, it was crazy. For maybe 5 days or so. In context ↗MildPaxlovid / nirmatrelvir
September 2025worked out two days in a row without crashingworking out for about 35 minutes at about 50%/+ the intensity I did pre-COVID - and not only doing it, but not feeling horrible after In context ↗MildLow-dose naltrexone
December 2025severe flare after Pneumovax 23 vaccineI’ve been extremely brain fogged and fatigued and bad headaches, back to close to as bad as I was after acute Covid. In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Headaches & migrainemigraine like headaches for hours if exertion not metered carefully In context ↗
  • Post-exertional malaisethey let me do more, but then I have to pay the piper and can be worse after because they let me over exert In context ↗
  • Brain fognew symptoms - a lot of nausea, brain fog, brain 'pain' with mental exertion, and same physical fatigue In context ↗
  • Gut problemsI have some kind of IBS / GI issues from LC In context ↗
  • Anxiety & low moodsomewhat calmed the most extreme ups and downs of mood swings/depression In context ↗
  • POTS & dysautonomiamy symptoms up til then were mostly just fatigue, lightheadedness with exertion In context ↗

Ask Miruvor AI

Asking aboutBadger 10938’s story

Similar stories

  • Mostly housebound with long COVID, helped by pacing, then worse after reinfection

    Relapsed Horizon 44452 Long COVID Severe at worstIll 4 years before improving or writing reddit.com Oct 2026

    Horizon 44452, a woman in Melbourne, fell ill with long COVID in 2022, developing pericarditis and severe PEM, with early POTS and possible MCAS/orthostatic intolerance. Mostly housebound for long stretches, she could walk or stand only 1–2 minutes and not…

  • Long COVID with brain fog, PEM and fatigue, somewhat better after pacing and LDN

    Somewhat better Tulip 55884 Long COVID Ill 4 years before improving or writing reddit.com Oct 2026

    Tulip 55884 caught COVID in August 2022 and developed long COVID with brain fog, PEM, suspected POTS and fatigue, at worst barely able to carry the dehumidifier tank up the stairs. Almost three years of pacing, rest, LDN and metformin brought them back to…

  • Long COVID bedbound at 5%, now much better but housebound, helped by pacing and LDN

    Much better Swan 59967 Long COVID Severe at worstIll 6.5 years before improving or writing reddit.com Sep 2026

    A trans man who caught COVID in March 2020 developed long covid with brain fog, fatigue and tachycardia, recovering about 85% over 14 months with time alone. A May 2022 reinfection left them bed bound at about 5% of baseline; a third infection in August…

  • Housebound long COVID at worst, improved on LDN then relapsed

    Relapsed Sequoia 15661 Long COVID Severe at worstIll 2 years before improving or writing reddit.com Sep 2026

    Sequoia 15661 caught COVID in 2022 and developed long COVID with PEM, POTS, heart palpitations and brain fog, reaching a worst of 15% and housebound a year in. LDN, guanfacine, Wellbutrin and alpha GPC helped; by summer 2025 they were about 90% recovered. A…

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime