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Long COVID Mild → somewhat betterIll 2 years before improving or writing

Long COVID with chest pain, dizziness and brain fog, now somewhat better

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
2 years
Last post
Mar 2024
In their words
  • At worst: MildI essentially live online, I don't really do much else. In context ↗
  • Now: Somewhat betterI feel somewhat recovered, but I can tell you that there's still a long ways to go In context ↗
Read from 9 of their posts and comments; links to the 7 this page draws on

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Summary

Coast 18184 caught COVID in January 2022, was sick about two weeks, then developed long-COVID symptoms: chest pain, dizziness, distorted smell and worse brain fog and memory issues. A February 2022 booster laid them out for two days. By November 2022 they felt somewhat recovered but said a long way remained; by March 2024 they still had chronic headaches, stuttering and brain fog while trialling metoprolol.

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What they tried

Their words about each treatment
  • CBD and weed · Not saidThey still have no positive effect for managing any pain that I may have, so I just turn to CBD and weed instead. In context ↗
  • standard multivitamin · Not saidI'm taking just a standard multivitamin atm In context ↗
  • prozac · Not saidI've tried prozac, zoloft (potential allergic reaction), lexapro, and effexor. In context ↗
  • effexor · WorseI did have severe mental health related side effects while on effexor, so I was required to stop immediately & call my primary. In context ↗
  • amitriptyline · HelpedMy chest pain did go down while on amitriptyline, but I had an increase in bpm. My resting went from 60s-70s to 80s-90s. My psych took me off In context ↗
  • quetiapine · Not saidMy psych took me off, and put me on quetiapine for now. In context ↗
  • metoprolol · Not saidI'm also currently on a beta blocker (metoprolol) for chronic headaches but I'm about 1.5mo in, out of 3mo that she wants to trial for effectiveness. In context ↗
  • otc pain meds · WorseI can't take otc pain meds, even though I've been off for well over a year now, because of rebound headaches. In context ↗
  • belly breathing · HelpedTaught us to breathe with our bellies, and it's been so frickin' helpful. In context ↗
  • COVID vaccination as treatment · Not saidThe booster was Feb 6, which only took me out for about 2 days In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2022-01-12caught COVID, sick for about a weekI had my first symptom show up on Jan 12, and I felt pretty "normal" in about 2 weeks In context ↗Mild
2022-02-06Pfizer booster, down about two daysThe booster was Feb 6, which only took me out for about 2 days In context ↗Mild
2022-11-02felt somewhat recoveredI feel somewhat recovered, but I can tell you that there's still a long ways to go In context ↗Mild
2023-04possible reinfection with distorted smell, thought to be allergiesI had a couple weeks in April 2023 where I thought I had severe allergies In context ↗Mild
2024-03-08still brain fog, stuttering and chronic headaches; trialling metoprololit is embarrassing to speak with my constant stuttering & brain fog In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationschest pain coming and going In context ↗
  • POTS & dysautonomiaI still get dizzy and light headed easily In context ↗
  • Loss of smell or tastemy sense of smell got distorted again, but then it went away after a day In context ↗
  • Brain fogsome symptoms got worse after covid tho, like brain fog and memory issues In context ↗
  • Anxiety & low moodI think I've become a bit of a hypochondriac since covid came around In context ↗
  • Temperature regulationI have severe heat intolerance In context ↗

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