Long COVID with inflamed legs and gut pain, somewhat better after cutting lactose and alcohol
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 7 months
- Last post
- Feb 2024
In their words
- Condition: Long COVID
I’ve had long COVID (I hope that’s what it is) since august
In context ↗ - At worst: Moderate
I have to walk slowly, and take a break if I go up stairs or a hill
In context ↗ - Now: Somewhat better
it’s eased up the last couple of weeks since cutting back on lactose and alcohol
In context ↗ - Began after: COVID
I’ve had long COVID (I hope that’s what it is) since august
In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on
Summary
Long COVID from about August 2023 brought inflamed legs and feet, so walking and stairs needed breaks, plus gut pain and bloating that got bad four months in. A COVID booster in early December 2023 gave three weeks of feeling much better before returning to feeling crap; glycine, started days later, made them feel more positive and alive. Cutting back on lactose and alcohol eased the gut symptoms by seven months in.
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What they tried
What they credit
Their words about each treatment
- Glycene · Helped
I've taken it for 2 days now and I'm much, much more positive about life, I want to do things (I still can't really, but I feel more alive).
In context ↗ - booster · Helped a lot
felt much better for about 3 weeks, went back to feeling crap again
In context ↗ - sleeping as much as possible · Helped
The best I’ve found is sleeping as much as possible.
In context ↗ - giving up lactose and cutting back on alcohol · Helped
it’s eased up the last couple of weeks since cutting back on lactose and alcohol
In context ↗ - flu shot · No change
I did, no difference.
In context ↗
Approaches: Amino acids and carnitine · Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| August 2023 | long COVID beganI’ve had long COVID (I hope that’s what it is) since augustIn context ↗ | Mild | |
| November 2023 | bloating and stomach pain got badAbout 4 months in it started getting badIn context ↗ | Mild | |
| early December 2023 | COVID booster gave three weeks of feeling much bettergot a booster early December after reading about experiences, felt much better for about 3 weeksIn context ↗ | Mild | COVID vaccination as treatment |
| 10 December 2023 | glycine made them feel more positive and aliveI’ve taken it for 2 days now and I’m much, much more positive about lifeIn context ↗ | Mild | |
| January 2024 | booster benefit wore off after three weekswent back to feeling crap againIn context ↗ | Moderate | |
| early February 2024 | gut symptoms eased after cutting lactose and alcoholit’s eased up the last couple of weeks since cutting back on lactose and alcoholIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Gut problems
I developed awful bloating and stomach pain in the last months with LC
In context ↗ - Muscle weakness
I have to walk slowly, and take a break if I go up stairs or a hill.
In context ↗ - Pain & fibromyalgia
Just less miserable and tired and achey really.
In context ↗ - Sleep problems
The best I’ve found is sleeping as much as possible.
In context ↗ - Anxiety & low mood
How am I supposed to keep on living like this???
In context ↗
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