ME/CFS
Mild → no benefitIll for 7 years
Constant fatigue and mental fog with ME/CFS; drugs tried brought no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 7 years
- Last post
- Apr 2014
In their words
- Condition: ME/CFS
I was diagnosed with Chronic Fatigue Syndrome a few months ago, after years of being tired all the time, and never having any/enough energy.
In context ↗ - At worst: Mild
I would come home from school, go to my room for a "nap", and sleep through to the next morning, when I would wake up feeling just as tired as I had the previous afternoon.
In context ↗ - Now: No benefit
I still feel as though I'm in a fog, most of the time, and I still never have any energy.
In context ↗ - Began after: glandular fever or EBV
I had been ill with Mono sometime in the past (probably during freshman year of high school)
Summary
Cardinal 50778 first noticed constant fatigue in their first year of high school, and was diagnosed with chronic fatigue syndrome by 2014, after years of unexplained tiredness. Blood tests showed a past Epstein-Barr infection. Adderall raised their pulse without clearing their mental fog, Elavil sent their blood pressure dangerously high and monthly B12 shots changed nothing. Nuvagil kept them awake but they still had no energy.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- Ambien · No change
It did NOT help me get "restful" sleep, by any means!
In context ↗ - Vitamin D · Not said
aside from Vitamin D (500U) that I was taking for a while, along with B12, before I was diagnosed
In context ↗ - B12 · No change
along with B12, before I was diagnosed ... my doctor also tried me on monthly B12 shots, which also made no difference to my energy levels
In context ↗ - Adderall · Worse
I lost a few pounds, had more frequent mood swings, and had chest discomfort from a racing heart, but I didn't feel any better.
In context ↗ - Elavil · Worse
After just three nights taking the Elavil, my blood pressure shot up into dangerous rates, so he took me off of it.
In context ↗ - Nuvigil · Helped
Although it does keep me AWAKE during the day (no more nodding off in class is definitely a plus), it doesn't make me any more mentally aware
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| freshman year of high school | constant fatigue first noticed; sleeping through after schoolI first "noticed" the fatigue when I was a freshman in high school. ... sleep through to the next morningIn context ↗ | Mild |
| second semester of college | fell back to part-time work, then quit the job; still exhaustedIt wasn't until I quit my job (after falling back to part-time) during the second semester of collegeIn context ↗ | Mild |
| April 2014 | in college on Nuvagil; still foggy and without energyI still feel as though I'm in a fog, most of the time, and I still never have any energy.In context ↗ | Mild |
Adverse events
- Amphetamine salts (Adderall)“it would increase my respiration rate, blood pressure, and pulse, but it didn't actually help me to "wake up"” In context ↗ Side effects
- Amphetamine salts (Adderall)“my pulse would increase to the 120 mark ... had chest discomfort from a racing heart, but I didn't feel any better” In context ↗ Heart rhythm problems
- Amphetamine salts (Adderall)“I lost a few pounds, had more frequent mood swings” In context ↗ Mood or psychiatric effects
- Amitriptyline (Elavil)“After just three nights taking the Elavil, my blood pressure shot up into dangerous rates, so he took me off of it” In context ↗ Side effects
- Zolpidem (Ambien)“would almost always end up waking up and doing random, silly things I couldn't remember in the morning” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I still feel as though I'm in a fog, most of the time
In context ↗ - Sleep problems
I would come home from school, go to my room for a "nap", and sleep through to the next morning, when I would wake up feeling just as tired as I had the previous afternoon.
In context ↗ - Heart symptoms & palpitations
my pulse would increase to the 120 mark
In context ↗ - Gut problems
Eating/digestion weigh me down as well
In context ↗