Long COVID with headache, fatigue and brain fog, now somewhat better
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 19 months
- Last post
- Aug 2022
In their words
- Condition: Long COVID
The whole reason we (vaccine long haulers) are here is because we took the vaccine.
In context ↗ - At worst: Moderate
I had been spending most of the day in bed and when I wasn't, I was in class struggling to stay awake while having a pounding headache.
In context ↗ - Now: Somewhat better
Overall I would say the head pressure/headache has improved but it’s definitely still there.
In context ↗ - Began after: a vaccination
I've really been freaking out about all this because it all stemmed from the vaccine which is so new.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
A 20-year-old dental lab tech developed an excruciating headache, severe fatigue and brain fog the day after a second Moderna dose in January 2021. After about two months they felt much better, then crashed the day after a one-mile run and had PEM. Fatigue eased again by April, but head pressure persisted seven months after the dose; daily aspirin barely helped and pravastatin had not helped after two weeks. They still called themselves a vaccine long hauler in August 2022.
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What they tried
Also tried
Their words about each treatment
- doxycycline · Not said
I also tested positive for lyme disease during this time for which I was given a course of doxycycline.
In context ↗ - low dose naltrexone · Not said
asked her if I can start low dose naltrexone, which she allowed. I've only been on it for a few days so I can't say anything definitive about it yet.
In context ↗ - aspirin · No change
I take aspirin every day but I don’t think does hardly anything
In context ↗ - pravastatin · No change
I’ve been on pravastatin for post-vax for almost two weeks and haven’t noticed anything yet.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| end of January 2021 | second Moderna dose followed by severe headache, fatigue and brain fogThe day after I received it, I woke up with absolutely the most excruciating headache I've ever experienced.In context ↗ | Moderate |
| February 2021 | in bed most of the day for about two monthsI had been spending most of the day in bed and when I wasn't, I was in class struggling to stay awakeIn context ↗ | Moderate |
| late March 2021 | started to feel a lot better over about a weekAfter about two months, I started to feel a lot better over the course of about a week.In context ↗ | Mild |
| early April 2021 | crashed the day after a one-mile runThe next day, I was absolutely slammed with all the symptoms I was having previouslyIn context ↗ | Moderate |
| 2021-04-18 | fatigue better but daily head pressure remainedI feel like my fatigue is better than it was about a month ago, but I have these strange headaches almost all day every day.In context ↗ | Mild |
| 2021-09-21 | head pressure improved but still presentOverall I would say the head pressure/headache has improved but it’s definitely still there.In context ↗ | Not stated |
| 2022-08-21 | still describing themselves as a vaccine long haulerThe whole reason we (vaccine long haulers) are here is because we took the vaccine.In context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I have these strange headaches almost all day every day.
In context ↗ - Post-exertional malaise
I had the hallmark symptom (PEM)
In context ↗ - Brain fog
severe fatigue and severe brain fog
In context ↗ - Anxiety & low mood
I've really been freaking out about all this because it all stemmed from the vaccine which is so new.
In context ↗