ME/CFS fatigue, aching muscles and sore throat, now mostly normal
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2022
In their words
- Condition: ME/CFS
so I got diagnosed with CFS/ME
In context ↗ - At worst: Mild
I can do pilates or go on a day-long hike, but a 20 minute jog wipes me out
In context ↗ - Now: Near normal
It took me about a month to recover completely, but for the most part I feel normal again now. I get joint pain more often than I used to
In context ↗
Read from 11 of their posts and comments; links to the 9 this page draws on
Summary
Gull 95608 got CFS/ME with fatigue, aching muscles and a sore throat, diagnosed after normal blood tests and no help from vitamin D. Working from home cut sick leave and energy crashes, though a 20-minute jog still wiped them out. The first Pfizer jab caused an energy crash for the rest of the day and took about 3 days to recover; the second knocked them out for a few days. They took about a month to recover completely and now feel mostly normal, with more frequent joint pain.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- Pfizer vaccine · Worse
I had Pfizer. I felt like I'd been punched in the arm pretty much straight away and my energy levels crashed for the rest of the day.
In context ↗ - Vit D supplements · No change
taking Vit D supplements didn't help
In context ↗ - Harvard form / symptom-tracking sheet · Helped
I've found the Harvard form in the FAQs of this Reddit so helpful for identifying what makes me crash
In context ↗ - working from home · Helped
working from home has cut my sick leave and energy crashes right back!
In context ↗ - therapist to talk to · Helped
Emotional energy is a major cause of crashes for me, so I find having a therapist to talk to really helpful.
In context ↗ - regular breaks, meditation break and afternoon naps · Helped
I take regular breaks, including a meditation break ... On bad days I'll have a 10-15 min nap in the afternoon.
In context ↗
Approaches: CBT & mindset · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | repeated fatigue, aching muscles and sore throat; diagnosed CFS/MEI kept getting "ill" with the same symptoms - fatigue, achey muscles and a sore throatIn context ↗ | Mild |
| 2021-07-08 | working from home cut sick leave and crashesworking from home has cut my sick leave and energy crashes right backIn context ↗ | Mild |
| 2021-06-11 | first Pfizer jab crashmy energy levels crashed for the rest of the day. Took me about 3 days to recover completelyIn context ↗ | Mild |
| 2021-08-05 | second Pfizer jab knocked them out for a few daysThe second Pfizer jab knocked me out for a few days, but I'm back to normal nowIn context ↗ | Mild |
| 2022-01-27 | mostly normal after COVID, with more frequent joint painIt took me about a month to recover completely, but for the most part I feel normal again now. I get joint pain more often than I used toIn context ↗ | Near normal |
Adverse events
- COVID vaccination as treatment“I felt like I'd been punched in the arm pretty much straight away and my energy levels crashed for the rest of the day. Took me about 3 days to recover completely.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“The second Pfizer jab knocked me out for a few days, but I'm back to normal now” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can do pilates or go on a day-long hike, but a 20 minute jog wipes me out
In context ↗ - Pain & fibromyalgia
I get joint pain more often than I used to
In context ↗ - Flu-like symptoms
fatigue, achey muscles and a sore throat
In context ↗ - Anxiety & low mood
I have mild anxiety too
In context ↗
Ask Miruvor AI
Similar stories
-
Housebound and off work with ME/CFS, now much better with LDN and pacing
Diagnosed with mild to moderate ME/CFS and POTS in the UK in 2024, after a covid-triggered episode in 2022 and a parasite infection in April 2024. Before starting LDN they had been housebound, used a wheelchair when out and were off work. Low-dose…
-
Not enough detail to draw a path
Mostly housebound with long COVID, now almost normal with pacing and progesterone
A 28-year-old Australian woman fell ill with long COVID in November 2024, after a COVID infection overseas, and was mostly housebound with several bedbound crashes. She credited strict Fitbit pacing, progesterone, intermittent fasting, a high-salt diet for…
-
Not enough detail to draw a path
ME/CFS bedridden nearly a month after flu jab, now much better with pacing and LDN
Fell ill in January 2010 with an unidentified virus that attacked her nervous system, spent three weeks in hospital and has had ME/CFS since. Mostly mild to moderate, she works a few hours a day from home and credits pacing, cutting sugar and carbs, LDN and…
-
Mostly bedbound with ME/CFS and daily POTS fainting, now much better with pacing
They developed ME/CFS after a COVID infection and were severe, mostly bedbound and fainting daily from POTS, for about two and a half years. Low-dose naltrexone, POTS medication, creatine and strict pacing helped them reach moderate, around Bell 40, but they…