ME/CFS
Mild → no benefit
ME/CFS with daily headaches and sensory overload, still ill after pacing and rest
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- May 2026
In their words
- At worst: Mild
I am not very severe ... I've been using my walking pad on days were I feel better for 30 minutes at a slow pace
- Now: No benefit
this is clearly going to take forever, so the best i can do is keep track of my symptoms and rest
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Glacier 83076 posted in May 2026 as someone new to CFS, not yet diagnosed. They described intense daily headaches, orthostatic intolerance on standing and sensory overload; doctors first treated anaemia, then migraines with propranolol and sumatriptan. They used a walking pad for 30 minutes on better days, found cold medicine eased grogginess, and tried pacing and rest. They called themselves not very severe and remained ill.
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What they tried
Also tried
cold medication· Helpedbeing mindful about standing· Helpedanemia treatment· No changeTylenol· Not saidwalking pad· Not saidpropanolol· Not saidsumatripan· Not said
Their words about each treatment
- Tylenol · Not said
They left me waiting for almost 8 hours to just to have me drink two fistfuls of Tylenol and send me home.
In context ↗ - cold medication · Helped
I've also noticed that cold medication helps me a bit with the overall grogginess
In context ↗ - walking pad · Not said
I've been using my walking pad on days were I feel better for 30 minutes at a slow pace.
In context ↗ - being mindful about standing · Helped
so I've been more mindful about that and i think it's helping
In context ↗ - anemia treatment · No change
first they were treating my anemia (thinking that would fix the fatigue, it did not)
In context ↗ - propanolol · Not said
now they're treating my migraines (propanolol + sumatripan)
In context ↗
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
was recently in the ER for intense daily headaches
In context ↗ - POTS & dysautonomia
standing is really rough on my body vs. just walking
In context ↗ - Light & noise sensitivity
protect my self from the visual over stimulation of the bright lights and people
In context ↗ - Temperature regulation
dressed in layers because i'm always too cold
In context ↗ - Brain fog
i struggle to think clearly when i'm overwhelmed/tired
In context ↗