ME/CFS
RelapsedIll 2.5 years before improving or writing
Mostly in bed two weeks with ME/CFS, improved then relapsed; aspirin, audiobooks help
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 2.5 years
- Last post
- Jun 2019
In their words
- Condition: ME/CFS
I still get all these symptoms, I had a brief period where I thought I was well and rid of the disease but recently I seemed to have relapsed
In context ↗ - Now: Relapsed
I had a brief period where I thought I was well and rid of the disease but recently I seemed to have relapsed
In context ↗ - Began after: another virus
and then Christmas 2016 I got the flu
Read from 2 of their posts and comments; links to the one this page draws on
Summary
ennea1111 became ill after flu at Christmas 2016 and was mostly in bed for about two weeks. Since then they have had swollen glands, low-grade fevers, nausea, IBS attacks, neck and jaw ache, headaches and insomnia. After a brief period of feeling well they relapsed and remain struggling; they find some help in aspirin with paracetamol, quiet audiobooks and rare sleep aids.
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What they tried
Also tried
Their words about each treatment
- aspirin · Helped
aspirin combined with paracetamol (seems to be the only combination that helps with my pain)
In context ↗ - The Honest Guys on YouTube / audiobooks · Helped
listening to The Honest Guys on YouTube at night to help me relax/audiobooks at a very quiet volume seem to help
In context ↗ - Nytol (antihistamine version) · Not said
if I know I need a good sleep because I have an event coming up, I will take a sleep aid like Nytol (antihistamine version) but I do this VERY rarely
In context ↗ - Night Nurse · Helped
if I am having flu symptoms, I again, very RARELY have Night Nurse - it helps with the aches and also helps with sleep
In context ↗ - pacing · Not said
I am still working on pacing....!
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| Christmas 2016 | got the flu; in bed about two weeks, up an hour at a timeI was mostly in bed for around 2 weeks. I could get up for around an hour before I needed to go back to sleep.In context ↗ | Severe |
| — | brief period of feeling wellI had a brief period where I thought I was well and rid of the diseaseIn context ↗ | Not stated |
| 2019 | relapsed after a brief period of feeling wellbut recently I seemed to have relapsed and it is a huge struggle for meIn context ↗ | Mild |
Symptoms mentioned
Flu-like symptomsGut problemsHeadaches & migrainePain & fibromyalgiaSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Flu-like symptoms
-glands up and down/sore throat
In context ↗ - Temperature regulation
low grade fever - too hot or too cold but not quite registering with a fever
In context ↗ - Gut problems
nausea (feeling like I am about to throw up but nothing happening) ... -IBS attacks
In context ↗ - Pain & fibromyalgia
neck/shoulder ache (feeling like my head was too heavy to hold up) ... -jaw ache
In context ↗ - Headaches & migraine
some mild headaches/foggy head
In context ↗ - Sleep problems
insomnia (so despite fatigue, couldn't really sleep day or night)
In context ↗