ME/CFS
Outcome unclearIll for 7.5 years
Bedbound for days after shopping with ME/CFS; rollator and wheelchair help
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 7.5 years
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
doctor says it definitely sounds like pem, gets me a referral to the me/cfs team in the area
In context ↗ - Began after: nothing they could name
experiencing pain for years since i was like 14/15
In context ↗
Summary
At 22, after years of pain since age 14 or 15, they were diagnosed with fibromyalgia; a doctor then recognised severe PEM and referred them to an ME/CFS team. Delayed crashes leave them bedbound for days after shopping or day trips. They use a rollator, a manual wheelchair pushed by their fiancé and sometimes compression socks: the rollator minimises crashes slightly, the wheelchair helps avoid flares, and the socks help dizziness and leg pain.
Ask Miruvor AI
What they tried
Their words about each treatment
- rollator · Helped
having a place to sit drains me slower even though i still experience pem for substantial trips with it
In context ↗ - manual wheelchair · Helped
he also helps push me in my manual wheelchair which i can't push myself due to fatigue and fibromyalgia-related pain in my arms, which again helps a lot and saves me going into pem
In context ↗ - compression socks · Helped
i use compression socks sometimes which help with the dizziness but also compress the pain in my legs which i love!
In context ↗
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
i experience quite severe pem where i'll have delayed crashes that leave me bedbound for days
In context ↗ - Pain & fibromyalgia
was diagnosed with fibromyalgia a few months ago after experiencing pain for years since i was like 14/15
In context ↗ - POTS & dysautonomia
i definitely have dysautonomia though and i use compression socks sometimes which help with the dizziness
In context ↗