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ME/CFS No benefitIll for 10 years

Ten years of ME/CFS exhaustion with no improvement; stimulants and kratom worsened symptoms

Condition
ME/CFS
At worst
Not stated
Ill for
10 years
Last post
Jan 2025
In their words
  • Condition: ME/CFSMy chronic fatigue began after quitting Adderall. In context ↗
  • Now: No benefitI’ve never regained my energy. It’s been around 10 years since my symptoms began. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Mesa 96785 dates their chronic fatigue to about ten years before their January 2025 post, when it began after they quit Adderall, which had stopped giving them energy. They remained exhausted, with normal lab results despite a Hashimoto's diagnosis, and reported no improvement. Stimulants, kratom and gluten now brought increased exhaustion, anxiety and a burning feeling in the muscles.

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What they tried

Their words about each treatment
  • resting in a dark, quiet room with a familiar audiobook · Not saidThe best way for me is to make my room as quiet and dark as possible, set an alarm for about an hour, then put on a favorite audiobook In context ↗
  • Adderall · HelpedIt worked great for me for about six months, than it started just leaving me exhausted. In context ↗
  • Kratom · WorseKratom, which used to give me an energy boost, gives me the same symptoms. In context ↗
  • gluten-free diet · Not saidsince I quit eating gluten, anytime I’ve tried to eat it. I get the same symptoms as well. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
onsetchronic fatigue began after quitting AdderallMy chronic fatigue began after quitting Adderall. In context ↗
2025-01-24still exhausted, no energy regained; meds now cause exhaustion, anxiety and muscle burningEven after quitting Adderall, I’ve never regained my energy. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodincreased exhaustion, increased anxiety In context ↗
  • Neuropathy & tinglinga burning sensation in my muscles In context ↗
  • Muscle weaknessa burning sensation in my muscles, almost like an allergic reaction In context ↗

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