Unable to walk with long COVID, now much better after salt and compression stockings
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Feb 2024
In their words
- Condition: Long COVID
I have had LC for 15 months now. Mainly POTS symptoms.
In context ↗ - At worst: Severe
I had severe weakness in my legs, couldn’t walk for about 3 months
In context ↗ - Now: Much better
I was able to get back at about 80% ... down for a week or so and nothing more
- Began after: COVID
Had COVID twice. First was in 2020 and that was before vaccine and it was horrible.
Read from 21 of their posts and comments; links to the 12 this page draws on
Summary
Fell ill with COVID in 2020 and could not walk for about three months; she improved over six to eight months. A July 2022 reinfection was followed by night-time tachycardia up to 175bpm starting in November, ER trips, a later POTS diagnosis and leg pain. Beta blockers were intolerable with low blood pressure, so she used salt, fluids and compression stockings, reaching about 80% by December 2023 before another reinfection; by February 2024 she was walking more.
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What they tried
What they credit
Also tried
Their words about each treatment
- beta blockers (bisoprolol) · Worse
I am on it for SVT and it’s causing me a bit of shortness of breath, dizziness and body pains.
In context ↗ - salt, fluids and electrolytes · Helped a lot
Make sure you get lots of liquid and salt. Only thing that have helped me tremendously.
In context ↗ - walking · Helped
I have been pushing myself to walk and workout more and felt that I was doing much better
In context ↗ - magnesium · Helped
Lots of salt, magnesium and electrolytes help.
In context ↗ - compression stockings · Helped
I wear the compressions stockings although I hate them so much but they do help a bit with the pain.
In context ↗ - B12 · Not said
I was taking B12 up to January when I was hospitalized after having severe bouts of tachycardia and once I had blood test my b12 was high so I stopped since.
In context ↗
Approaches: POTS medication · Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | First COVID-19 infection; severe leg weakness, could not walk for about three months, vision problemsI had severe weakness in my legs, couldn’t walk for about 3 monthsIn context ↗ | Severe |
| six to eight months later | gradual recovery, left with palpitations, dizziness and eye floatersit took me about 6-8 month to get betterIn context ↗ | Mild |
| November 2022 | extreme night-time tachycardia up to 175bpm, ER visits, daily dizziness, leg weakness and painI started experiencing extreme Tachycardia at night when sleeping.In context ↗ | Moderate |
| September 2023 | other symptoms better, still tachycardia and daily palpitationsOther symptoms got better.In context ↗ | Mild |
| December 2023 | back to about 80% of normalI was able to get back at about 80%In context ↗ | Mild |
| December 2023 | COVID reinfection caught from child's schoolcaught COVID from my kid’s school a few days ago :(In context ↗ | Mild |
| February 2024 | pushing herself to walk and work out more; still awaiting a POTS specialistI have been pushing myself to walk and workout more and felt that I was doing much betterIn context ↗ | Mild |
Adverse events
- Bisoprolol (Concor)“I am on it for SVT and it’s causing me a bit of shortness of breath, dizziness and body pains.” In context ↗ Side effects
- Bisoprolol (Concor)“I couldn’t handle beta blockers because my BP is very low and would drop even lower.” In context ↗ Low blood pressure or fainting
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I was diagnosed with POTS after having COVID.
In context ↗ - Pain & fibromyalgia
Yes, my legs hurts all the time.
In context ↗ - Muscle weakness
I had severe weakness in my legs
In context ↗ - Headaches & migraine
I have mostly head pressure/pain, weakness and congestion.
In context ↗ - Gut problems
Like headache, nausea, fever..
In context ↗ - Vision problems
lots of vision issue
In context ↗ - Anxiety & low mood
I am so lost and depressed:(
In context ↗ - Post-exertional malaise
I’m also scared of going and over exhausting my body and then have worst LC.
In context ↗
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