Severely unwell with ME/CFS for a year, now much better; medical cannabis helped PEM
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I got diagnosed with ME 1.5 years ago
In context ↗ - At worst: Severe
I got diagnosed with ME 1.5 years ago and was severe for a lot of it.
In context ↗ - Now: Much better
I've gone back to work recently at 12 hours but now I can work from home which helps :) it's very difficult especially with the added stress.
In context ↗
Read from 14 of their posts and comments; links to the 11 this page draws on
Summary
A patient diagnosed with ME about 1.5 years earlier described a horrendous year of being severely unwell, with only small weeks of remission. By May 2026 they had returned to work 12 hours and could work from home, which was difficult, and in June reported a severe flare with crying and not sleeping. They still push through and accept PEM afterwards; medical cannabis helped their fibromyalgia and PEM.
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What they tried
What they credit
Also tried
Their words about each treatment
- Pacing · Not said
Pacing and gratitude is what my OT taught me.
In context ↗ - sertraline · No change
On sertraline, no difference
In context ↗ - opioids · Helped
They work great for me, and like any drug you have to get used to the side effects and they lessen eventually.
In context ↗ - smoking (nicotine) · No change
I literally smoke and it doesn't help lol
In context ↗ - speed · Worse
I took speed once and it was awful
In context ↗ - crystals · No change
Probably wear crystals. They don't work but do provide some comfort
In context ↗ - biologics · No change
I am on biologics and it's made no difference at all.
In context ↗ - medical cannabis · Helped
I used medical cannabis it helps with my fibro and pem
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | ME/CFS began, cause not statedI got diagnosed with ME 1.5 years ago and was severe for a lot of it.In context ↗ | Not stated |
| 2025 | horrendous year severely unwell, only small weeks of remissionI have had a horrendous year of being severely unwell. But there have been small weeks of remission where I felt kinda human again.In context ↗ | Severe |
| 2026-05-11 | back to work 12 hours a week, now working from homeI've gone back to work recently at 12 hours but now I can work from home which helpsIn context ↗ | Mild |
| 2026-06-27 | severe flare, crying and not sleepingI'm in a severe flare at the moment . When I am like this I am a emotional wreck. I cry, I don't sleep.In context ↗ | Severe |
| 2026-07-21 | pushes through activities and accepts PEM afterwardsIf I push through I'm going to have a terrible hangover (pem) but it was worth it for the fun time.In context ↗ | Mild |
Adverse events
- Monoclonal antibodies (unspecified)“I am on biologics and it's made no difference at all. If anything the make me feel rough the next day” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
If I push through I'm going to have a terrible hangover (pem)
In context ↗ - Pain & fibromyalgia
it helps with my fibro and pem
In context ↗ - Sleep problems
I cry, I don't sleep
In context ↗ - Anxiety & low mood
it's just bombarding me with anxiety
In context ↗ - Flu-like symptoms
Appreciate the small moments of not feeling like I've been poisoned
In context ↗
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