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Long COVID Moderate → no benefit

In bed for weeks with long COVID, rotten smell and taste, walking again didn't help

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
May 2021
In their words
  • Condition: Long COVIDI had Covid in January and was home in bed for 3-4 weeks. In context ↗
  • At worst: ModerateI couldn't even walk at a sloooow pace for more than 10 minutes, and that even knocked me on my ass for the days to follow. In context ↗
  • Now: No benefitI am coming to accept that this part of my life is going to be very different for a very long time, but it's definitely taking a mental toll. In context ↗
Read from 3 of their posts and comments; links to the 2 this page draws on

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Summary

They had COVID in January 2021 and were in bed for three to four weeks; a persistent rotten smell and altered taste were miserable. From late February they tried walking again, first for five minutes (then ten), and later for fifteen; the early attempts put them on their back for days, and an hour of shopping left them breathing laboured the next day. By May 2021 they had backed off activity entirely, planning only a short walk.

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What they tried

Their words about each treatment
  • walking / treadmill walking · WorseI tried again in mid-March with the same results. I was walking on the treadmill at 2.5 miles per hour, for reference. Slow. In context ↗
  • backing off completely · Not saidSo, I have decided to back off completely. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
January 2021COVID-19, in bed 3-4 weeksI had Covid in January and was home in bed for 3-4 weeks. In context ↗Moderate
February 20crashed after trying to walk for 5 minutesI tried to return to walking around February 20 ... after five minutes I knew it was a mistake. In context ↗Moderate
mid-Marchtried walking again on the treadmill, same resultI tried again in mid-March with the same results. In context ↗Moderate
mid-Aprilwalked 15 minutes, still a bad ideaTried again mid-April. Made it 15 minutes. Still a bad idea. In context ↗Moderate
mid-May 2021errands and an hour of shopping; laboured breathing the next dayThe next day I could feel it. I was still up and around but I could even feel that my breathing was more labored. In context ↗Moderate
2021-05-20backed off activity completely, planning a short walkSo, I have decided to back off completely. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI couldn't even walk at a sloooow pace for more than 10 minutes, and that even knocked me on my ass for the days to follow. In context ↗
  • BreathlessnessI could even feel that my breathing was more labored In context ↗
  • Anxiety & low moodit's definitely taking a mental toll In context ↗

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