Long COVID fevers and brain fog, somewhat better after time off work and therapy
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Apr 2026
In their words
- Condition: Long COVID
I also have long covid and just got infected for the fourth time.
In context ↗ - At worst: Moderate
I recognize how fortunate I am with the level of severity mine has been since I can get out of bed
In context ↗ - Now: Somewhat better
The fatigue seems to be improving almost 3 years in, but I still get major crashes.
In context ↗ - Began after: COVID
on November 13, 2022 my fever started up again and lasted for 3 months along with 35+ other symptoms
Read from 47 of their posts and comments; links to the 27 this page draws on
Summary
Crocus 10620 developed long COVID in November 2022: three months of fevers, severe insomnia, night heart-rate spikes and cognitive decline while still working. Time off work stopped the heart spikes, trazodone helped sleep, and speech and vision therapy improved thinking and vision. Over three and a half years things got better than year one, but crashes, anxiety and brain fog remained; a fourth infection in 2025 cost $1,400 in Paxlovid.
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What they tried
What they credit
Also tried
Their words about each treatment
- steroids · No change
2 rounds of steroids definitely didn’t do a thing for me.
In context ↗ - Headspace app · No change
Anyways the Headspace app never really helped.
In context ↗ - Box Breathing · Helped
“Box Breathing” is my go to solve.
In context ↗ - deep tissue massage · Worse
Deep Tissue massage led to me being down and out for a couple days after that both mentally and physically.
In context ↗ - Ambien · No change
I’ve even tried ambien and it doesn’t help.
In context ↗ - Costco sleep pills · Helped
Probably the best night I’ve had in 2 months.
In context ↗ - Trazodone · Helped a lot
Trazadone was a game changer for my severe insomnia.
In context ↗ - Prozac · No change
I tried Prozac early on at the recommendation of my doctor who said chronic illnesses usually necessitate some level of depression and realized no difference.
In context ↗ - time off work · Helped a lot
Once I finally took time off work, the insane heart rate spiking stopped.
In context ↗ - Guanfacine · Worse
I’m on day 3 of Guanfacine and NAC and cognition feels worse.
In context ↗ - speech therapy · Helped a lot
I’m also in speech therapy! ... It has been a godsend.
In context ↗ - occupational therapy · Helped
I also went to occupational therapy for a bit. ... all the therapies I have been in have helped
In context ↗ - vision therapy · Helped
seeing an Opthamolohist (not an Optometrist) and going through vision therapy was super helpful.
In context ↗ - hatha yoga · Helped
Yoga, hatha to be specific, took 6-8 months to feel benefits for me.
In context ↗ - 6 day fast · Helped
6 day fast was helpful. ... Didn’t make everything go away, but I felt “better.”
In context ↗ - Paxlovid · Helped
I got Paxlovid. ... Cost me $1400 out of pocket, but I think it helped.
In context ↗ - kefir · Helped
Kefir is a noticeable change
In context ↗ - naturopath doctor · Not said
I’ve had the best luck with one over a functional doctor
In context ↗ - symptom journal · Helped
I recorded every symptom, setback and a pulse of how I felt every day for the first 2 years.
In context ↗
Approaches: CBT & mindset · Diet · Mind-body practices · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| November 13, 2022 | long COVID began with three months of fever and 35+ other symptomsI felt okayish/better for 4 days and then on November 13, 2022 my fever started up again and lasted for 3 months along with 35+ other symptomsIn context ↗ | Moderate |
| December 2022 | severe insomnia and 2am heart-rate spikes while still workingI’ve never been so tired and yet unable to sleep. I’ve even tried ambien and it doesn’t help.In context ↗ | Moderate |
| January 14, 2023 | heart-rate spikes stopped after taking time off workOnce I finally took time off work, the insane heart rate spiking stopped.In context ↗ | Mild |
| January 18, 2023 | sleep and mood improved on low-dose Prozac plus trazodoneLow dose 10mg Prozac and 50mg Trazadone (for sleep). Magic combo.In context ↗ | Mild |
| 2023-08-18 | started speech and cognitive therapyI’m also in speech therapy! It has been a godsend.In context ↗ | Mild |
| 2024-06-11 | vision therapy for double vision and fusion problemsgoing through vision therapy was super helpfulIn context ↗ | Mild |
| 2025-08-23 | fourth COVID infection, seven days in a dark roomI also have long covid and just got infected for the fourth time. Spent the last 7 days in a dark room sleeping non-stop.In context ↗ | Severe |
| 2025-10-05 | vision deteriorated after a recent infectionNoticing a deterioration again after a recent Covid infection.In context ↗ | Mild |
| 2026-04-15 | better than year one but still crashingit does get better. 2 steps forward, 3 steps back sometimes, but I’m better than the year 1.In context ↗ | Mild |
Adverse events
- Massage“Deep Tissue massage led to me being down and out for a couple days after that both mentally and physically.” In context ↗ Made symptoms worse
- Trazodone (Desyrel), Fluoxetine (Prozac)“I also had intrusive thoughts when I was on a ssri and have never felt that low.” In context ↗ Mood or psychiatric effects
- Guanfacine“I’m on day 3 of Guanfacine and NAC and cognition feels worse.” In context ↗ Made symptoms worse
- NAC (N-acetylcysteine)“I’m on day 3 of Guanfacine and NAC and cognition feels worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I have a really long, busy day and exert too much and then I crash for a week plus
In context ↗ - Brain fog
my brain seems to have had the most issues (vision, brain fog, memory loss, executive function that is not what it once was
In context ↗ - Sleep problems
Trazadone was a game changer for my severe insomnia.
In context ↗ - Heart symptoms & palpitations
The 2am wakeups with a pounding heart (normally 56-60 to then 85-110) gradually tapered off
In context ↗ - Anxiety & low mood
14 months in and so much anxiety still.
In context ↗ - Vision problems
Found out COVID gave me double vision and fusion problems that made my 20/20 vision go blurry.
In context ↗ - Gut problems
I had lots of GI issues during the first year and a half. I’m talking daily diarrhea.
In context ↗ - Temperature regulation
my fever started up again and lasted for 3 months along with 35+ other symptoms
In context ↗
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