Long COVID with chronic 24/7 migraines, somewhat better after Ajovy
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2023
In their words
- Condition: Long COVID
challenge is managing fatigue + feeling dumb (cognitive impairment) + exhaustion talking to others.
In context ↗ - At worst: Mild
I have kept working for last 18 mths - even if just a few hours a week. ... A big day is followed by recover (eg 45 min meeting with client = 4 days to recover)
In context ↗ - Now: Somewhat better
Down to 5-7 per month now. Still have low level headache on other days but so much more bearable. ... challenge is managing fatigue + feeling dumb (cognitive impairment) + exhaustion talking to others.
Summary
Posting in a long COVID forum in July 2023, had kept working a few hours a week for 18 months. Chronic 24/7 migraines had not responded to tablets; monthly Ajovy (fremanezumab) injections cut them to 5-7 a month, with low-level headaches on other days. Fatigue, cognitive impairment and a 45-minute meeting needing four days to recover remained; work was managed with pacing and lower cognitive load.
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What they tried
What they credit
Also tried
Their words about each treatment
- various tablets · No change
Had chronic migraines 24/7. None of the various tablets worked.
In context ↗ - Ajovy (Fremanezumab) · Helped a lot
Started monthly Ajovy jabs (Fremanezumab) which has made such a difference. Down to 5-7 per month now.
In context ↗ - Pacing · Helped
Keys to success for me are + Pacing
In context ↗
Approaches: Pacing
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | chronic daily migraines that no tablet helpedHad chronic migraines 24/7. None of the various tablets worked.In context ↗ | Not stated |
| 2023-07-29 | migraines cut to 5-7 a month; still working a few hours a week with pacingStarted monthly Ajovy jabs (Fremanezumab) which has made such a difference. Down to 5-7 per month now.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
Down to 5-7 per month now. Still have low level headache on other days
In context ↗ - Brain fog
feeling dumb (cognitive impairment)
In context ↗ - Post-exertional malaise
a big day is followed by recover (eg 45 min meeting with client = 4 days to recover)
In context ↗
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