Long COVID, writing from bed and not working for over two years, still ill
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 6.5 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I'm an OG long hauler from March 2020.
In context ↗ - At worst: Severe
This message sent from my bed aka primary home
In context ↗ - Now: No benefit
I'm on LDN and clonidine now, just started in the last six months and like you said have found it helpful but not the answer.
In context ↗ - Began after: COVID
I'm an OG long hauler from March 2020.
In context ↗
Read from 15 of their posts and comments; links to the 6 this page draws on
Summary
Pebble 17550 has had long COVID since March 2020. By 2024 he had not worked for over two years while waiting on disability, writing from bed. Propranolol helped his fatigue and PEM somewhat, and low-dose naltrexone with clonidine was helpful but not the answer; several ADHD medications helped for a week or two and then stopped, causing insomnia. Six and a half years in he was still ill.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- individual and couples therapy · Helped
I'm in individual and couples therapy, had really helped with the "suffering", depression, crappy thoughts about myself, suicidal ideations
In context ↗ - Vagus nerve stimulator (TENS machine) · Helped
Subjectively I think it's helped some but nothing miraculous
In context ↗ - Nattokinase, serrapeptase and other fibrinolytic · No change
Didn't help me, glad it did you! ... No improvement. No impact either way for me. I tried them for 6 months.
- Propranolol · Helped
Propranolol has helped me some. ... It helped my fatigue and PEM some
- LDN · Helped
I'm on LDN and clonidine now, just started in the last six months and like you said have found it helpful but not the answer
In context ↗ - adhd meds · Helped
None have helped long term without giving me insomnia. ... They usually work for a week or two and then peter out
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | Long COVID onsetI'm an OG long hauler from March 2020.In context ↗ | Not stated | |
| March 2024 | In bed much of the day, out of work over two yearsThis message sent from my bed aka primary homeIn context ↗ | Severe | |
| August 2025 | Propranolol helped fatigue and PEM somewhatIt helped my fatigue and PEM someIn context ↗ | Moderate | Propranolol (Inderal) |
| January 2026 | LDN and clonidine started, helpful but not the answerI'm on LDN and clonidine now, just started in the last six months and like you said have found it helpful but not the answer.In context ↗ | Moderate | Low-dose naltrexone |
| September 2026 | Still ill six and a half years in; ADHD stimulants helped only brieflyNone have helped long term without giving me insomnia.In context ↗ | Moderate |
Adverse events
- Stimulants (unspecified)“gone through so many adhd meds. None have helped long term without giving me insomnia.” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Brain fog
my better days are slightly better when it comes to the brain fog
In context ↗ - Post-exertional malaise
It helped my fatigue and PEM some
In context ↗ - Anxiety & low mood
had really helped with the "suffering", depression, crappy thoughts about myself, suicidal ideations, etc.
In context ↗