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Long COVID Severe → much better

Housebound, often bedbound, long COVID; now jogging intermittently after rest and pacing

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Aug 2025
In their words
  • Condition: Long COVIDthe 4 years of LC have completely coincided with my undergraduate degree In context ↗
  • At worst: Severewithin 18 months I am now house bound and bed bound on the bad days In context ↗
  • Now: Much betterI'm slowly getting back into running (more like intermittent jogging) In context ↗
Read from 30 of their posts and comments; links to the 19 this page draws on

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Summary

A UK man who fell ill with COVID-19 in March 2020 was housebound and often bedbound within 18 months after pushing on with rowing, gym work and university. A suspected 2022 reinfection brought post-exertional malaise. Rest and pacing, lion's mane and high-dose magnesium with vitamin D helped, and nicotine patches eased crashes but caused headaches and worse POTS. By August 2024 he was jogging intermittently.

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What they tried

Their words about each treatment
  • gym and rowing · Much worsethought f it I'll just turn to the gym and rowing ... within 18 months I am now house bound and bed bound on the bad days In context ↗
  • pacing · HelpedMy top tip is pacing ... I am able to walk further for longer now than I was a year ago because of it. In context ↗
  • Lions mane · HelpedLions mane got me from needing someone what to reply to emails to a 96 on my essay In context ↗
  • meditation, mindfullness · HelpedCold showers, meditation, low inflammatory diet, no alcohol, no caffeine, mindfullness, therapy In context ↗
  • natto · No changeBeen on natto for the longest time but nothing seems to have shifted x In context ↗
  • the patches · HelpedFound they're good for getting through bad crashes but ofc its a stimulant so it bites you in the ass if you over do it. In context ↗
  • Ashwagandha tea · HelpedAshwagandha tea does wonders for me. In context ↗
  • working on my gut · HelpedI've been working on my gut for about a year now ... the improvements are undeniable In context ↗
  • Reishi mushroom supplements · Not saidI'm currently experimenting with Reishi mushroom supplements for sleep but nothing conclusive yet In context ↗
  • aspirin · Helpednicotine and aspirin gets me out of the real slumps In context ↗
  • Sodium electrolytes · HelpedSodium electrolytes are great. 250mg tablets 2-3 times a day. In context ↗
  • L-theanine · HelpedL-theanine I've found to be great when taken with Mg Glycinate just before bed In context ↗
  • COVID vaccination as treatment · WorseJabs put me where I am today. In context ↗

Approaches: CBT & mindset · Alternative therapies · Diet · Mind-body practices · Pacing

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2020COVID-19 while working in a restaurant; kept rowing, partying and studyingkept rowing, partying, relationship-ing (like many 1st wavers) In context ↗Mild
2021housebound and bedbound on bad days after overdoing it physicallywithin 18 months I am now house bound and bed bound on the bad days In context ↗Severe
2022suspected reinfection; post-exertional malaise appearedPEM wasn't an issue until 2022 and a suspected reinfection In context ↗Severe
2024-02able to walk further after months of resting and pacingI am able to walk further for longer now than I was a year ago because of it In context ↗ModeratePacing and the energy envelope
2024-08slowly getting back into joggingI'm slowly getting back into running (more like intermittent jogging) In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisePEM wasn't an issue until 2022 and a suspected reinfection In context ↗
  • Brain fogGot me through final year and dissertation with severe brain fog In context ↗
  • Sleep problemsIt took me about a year to shake the insomnia but only once I dropped exercise did I see a difference. In context ↗
  • POTS & dysautonomialeft with thumping headache and more turbulent POTS In context ↗
  • Heart symptoms & palpitationscoffee I had to drop, its a vasoconstrictor hence why it worsens palpitations In context ↗
  • Gut problemsI've been working on my gut for about a year now In context ↗
  • Vision problemsas if my eyes are receiving information from the very back of my skull as opposed to the front In context ↗

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