12 years with ME/CFS, much better for two years after fasting and diet, then relapsed
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 12 years
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
I have a SFC since 12y
In context ↗ - Now: Relapsed
I was really better and sporty during 2y after changing deeply my lifestyle + supplements ... too much stress made me sicker again since last year (but not the same as before)
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They have had SFC for 12 years. After deeply changing their lifestyle and taking supplements they were much better and sporty for two years, and became a nutrition and micronutrition specialist. Too much stress made them sicker again from the previous year, though not the same as before, and they lack the energy to repeat what had helped. They credited fasting, diet changes, supplements, pacing and mindfulness.
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What they tried
What they credit
Also tried
Their words about each treatment
- SFC mitochondria targeting supplementation · Helped
SFC mitochondria targeting supplementation, and glutamine (more for gut than mitochondria)
In context ↗ - long fasting · Helped
long fasting at the beginning, then 1, 2 or 3 days every time I felt I needed
In context ↗ - intermittent fasting · Helped
and / or intermittent fasting
In context ↗ - no more industrials sugars, no gluten, no dairy; eating vegetables, fruits and animal proteins · Helped
no more industrials sugars ... eating vegetables, fruits and animal proteins
In context ↗ - rest, pacing method, and having activity if possible and adapted · Helped
rest, pacing method, and having activity if possible and adapted
In context ↗ - mindfulness, hypnosis, relaxation, not believing my thoughts · Helped
mindfulness, hypnosis, relaxation, not believing my thoughts
In context ↗ - speaking openly about my disease to people around me · Helped
speaking openly about my disease to people around me able to listen and react with love and compassion
In context ↗
Approaches: Amino acids and carnitine · Diet · Mind-body practices · Pacing
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 12 years before 2024 | onset of SFC (ME/CFS)I have a SFC since 12yIn context ↗ | Not stated |
| — | much better and sporty for 2 years after lifestyle change and supplementsI was really better and sporty during 2y after changing deeply my lifestyle + supplementsIn context ↗ | Near normal |
| last year | crashed after too much stresstoo much stress made me sicker again since last year (but not the same as before)In context ↗ | Not stated |
| 2024-12-31 | still ill, unable to repeat what had helpedI don't find the energy to do again properly what made me betterIn context ↗ | Not stated |
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