Long COVID
Severe → relapsedIll 8 months before improving or writing
Long COVID, barely functional, bedbound flares, improved then relapsed; tried naltrexone
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 8 months
- Last post
- Jul 2026
In their words
- Condition: Long COVID
I’ve been battling long Covid since dec 2021
In context ↗ - At worst: Severe
From my experience (I’ve had LC since 2021/ bed bound for apx the first 6 months)
In context ↗ - Now: Relapsed
one day something just snapped and my body took an insane plunge back into LC or ME/CfS. I’ve been there for the past year
In context ↗ - Began after: COVID
I had my initial infection in sept 2021, sometime in December of 2021 I started feeling a sore throat again which kept getting worse
Read from 226 of their posts and comments; links to the 60 this page draws on
- Sep 2022
- Apr 2026
- Mar 2026
- Jun 2023
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- May 2026
Summary
Long COVID began in December 2021; they were barely functional for the first 8–9 months, with bedbound flare-ups after overexertion. From around month eight they improved slowly, using low-dose naltrexone, a low-histamine diet, cold showers, antihistamines and gradually longer walks, reaching around 80% by month 13 but not back to normal.
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What they tried
What they credit
low dose naltrexone (LDN)· Helped a lot · maincold showers· Helped a lot · mainwalking and gradually increasing distance· Helped a lotnicotine patches· Helped a lotphysical therapy regimen· Helped a lotZyrtec· HelpedPepcid (famotidine)· Helpedlow histamine diet· Helpedcutting out gluten, sugar, dairy· Helpedcutting out gluten, sugar, dairy· Helpedcutting out gluten, sugar, dairy· Helpedintermittent fasting· Helpedprobiotic and prebiotic· Helpedpacing· Helpedbreathwrk breathing app· Helpedelectrolytes· HelpedDAO supplement· Helpedself massage· Helpedtestosterone replacement therapy· Helped
Also tried
changing my mindset· Helped a lotmagnesium· Helpedmelatonin· Helpedheparin given with ozone therapy· HelpedFoodMarble device· HelpedHcl· Helpedgrass fed protein powder· Helpedozone therapy· No changemontelukast· No changedoing nothing at all for a week· No changekefir· WorseXanax· Worseibuprofen· Worseantibiotics· WorseBPC-157· WorseCJC· Worsecarnivore diet· Worsevitamin regimen· Not saidglutathione· Not saidnattokinase· Not saidstatins· Not saidbaby aspirin· Not saidWhey protein· Not said
Their words about each treatment
- low dose naltrexone (LDN) · Helped a lot
It gave me my brain back.
In context ↗ - cold showers · Helped a lot
Cold showers helped my situation tremendously.
In context ↗ - Zyrtec · Helped
I would try taking 24 hour zyrtec, it’s made things a bit easier for me.
In context ↗ - Pepcid (famotidine) · Helped
The combo of Zyrtec and pepcid helped me jump start feeling a bit more back to normal.
In context ↗ - low histamine diet · Helped
My body feels much better intermittent fasting and doing the low histamine thing
In context ↗ - cutting out gluten, sugar, dairy · Helped
It definitely made things a lot better but I still suffer from long COVID unfortunately.
In context ↗ - intermittent fasting · Helped
intermittent fasting, having an 8 hour eating window
In context ↗ - probiotic and prebiotic · Helped
I also started pre and pro biotics prior to bedtime, this I’ve 100% noticed helping
In context ↗ - kefir · Worse
Kefir wasn’t great for me, I definitely have a histamine reaction to dairy still
In context ↗ - walking and gradually increasing distance · Helped a lot
In 6 weeks I went from 1/2 mile to 4 miles on a treadmill.
In context ↗ - pacing · Helped
since I’ve learned how to pace my daily activities things have gradually improved
In context ↗ - breathwrk breathing app · Helped
The breathwrk app really helped me learn to use my diaphragm again
In context ↗ - electrolytes · Helped
electrolyte packets helped quite a bit
In context ↗ - magnesium · Helped
Magnesium and melatonin have helped w my sleep
In context ↗ - melatonin · Helped
I’ve also been taking 10mg of melatonin at night
In context ↗ - vitamin regimen · Not said
the vitamins I’m not quite sure what’s made a difference of any
In context ↗ - glutathione · Not said
melatonin, magnesium, vitamin d and glutathione before bed
In context ↗ - nattokinase · Not said
I’ve been on the supplement nattokinase but no idea if it’s had any effect
In context ↗ - Xanax · Worse
I find that they actually make anxiety worse when they wear off.
In context ↗ - ibuprofen · Worse
I took ibuprofen for a couple weeks but it really raised my blood pressure and almost made me feel worse
In context ↗ - antibiotics · Worse
then antibiotics for what was thought to be strep throat ... This destroyed my stomach.
In context ↗ - ozone therapy · No change
I did ozone therapy, which was a waste of money, don’t do it
In context ↗ - heparin given with ozone therapy · Helped
for a few hours after them giving me the heparin my symptoms went down significantly
In context ↗ - BPC-157 · Worse
I had a poor reaction to it
In context ↗ - CJC · Worse
I had the same with CJC
In context ↗ - montelukast · No change
I took it for a few months and noticed nothing.
In context ↗ - FoodMarble device · Helped
This device has helped me quite a bit.
In context ↗ - Hcl · Helped
Hcl helped me w my low stomach acid
In context ↗ - grass fed protein powder · Helped
It’s also helped with some of my stomach issues and keeps me from losing too much weight.
In context ↗ - self massage · Helped
self massaging the tightness from lactic acid build up
In context ↗ - statins · Not said
countless supplements/vitamins, statins, LDN
In context ↗ - testosterone replacement therapy · Helped
Testosterone Replacement therapy was a huge factor in helping me feel slightly better.
In context ↗ - nicotine patches · Helped a lot
giving low dose naltrexone and nicotine patches a shot. They dramatically helped me
In context ↗ - doing nothing at all for a week · No change
I’ve also tried the doing nothing at all for a week and it didn’t make me feel any better
In context ↗ - baby aspirin · Not said
daily baby aspirin
In context ↗ - physical therapy regimen · Helped a lot
a regiment of physical therapy to slowly build my stamina back up ... helped me put this into remission last time
In context ↗ - changing my mindset · Helped a lot
This sounds stupid but it changed everything once I did this and stuck to it.
In context ↗ - carnivore diet · Worse
I was on a carnivore diet prior to testing for SIBO and eating basically all red meat
In context ↗ - Whey protein · Not said
Whey protein didn’t sit well with my stomach so this was an alternative
In context ↗
Approaches: H1 antihistamines · H2 blockers · POTS medication · Alternative therapies · Antihistamines & MCAS · Diet · Mind-body practices · Pacing · Physiotherapy and rehab · Sex hormones · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2021 | long COVID began after a September 2021 COVID infectionsometime in December of 2021 I started feeling a sore throat again which kept getting worseIn context ↗ | Not stated | |
| first six months, 2022 | bedbound, could barely take out the garbage without crashingI’ve had LC since 2021/ bed bound for apx the first 6 monthsIn context ↗ | Severe | |
| October 2022 | started a recovery regimen and felt considerably betterIn the last month I feel considerably better than I have.In context ↗ | Moderate | Low-dose naltrexone |
| January 2023 | felt about 80% most days and was back to light workoutssince about month 9 I’ve felt a slow progression of healing and daily I feel about 80%, sometimes in the 90sIn context ↗ | Mild | |
| December 2023 | COVID reinfection temporarily cleared long COVID for monthsAfter I got COVID again about 14 months ago my long COVID almost totally cleared upIn context ↗ | Near normal | |
| late 2024 | remission, back to normal and working out againI felt I had Lc in remission after about 3 years. I felt basically back to normal, working out again etc.In context ↗ | Recovered | |
| 2025 | crashed after months of heavy lifting clearing a warehouseafter a couple months one day something just snapped and my body took an insane plunge back into LC or ME/CfSIn context ↗ | Moderate | |
| July 2026 | rebuilding stamina with short indoor walksI’m back to the begging stages of attempting to recover and slowly working up stamina by walking small amounts indoors every dayIn context ↗ | Moderate |
Adverse events
- Low-dose naltrexone“The main side effect for me has been slight nausea and headache after I take it.” In context ↗ Side effects
- Ibuprofen (Advil, Nurofen, Motrin)“after a week it caused high blood pressure and horrible acid reflux so they took me off it” In context ↗ Side effects
- Ibuprofen (Advil, Nurofen, Motrin)“I was put on ibuprofen but this I think made my stomach issues much worse” In context ↗ Gut side effects
- Antibiotics (unspecified)“I’m going on 14 months with long Covid that seemed to be exacerbated by anti biotics.” In context ↗ Made symptoms worse
- Antibiotics (unspecified)“then antibiotics for what was thought to be strep throat but looking back, most likely wasn’t. This destroyed my stomach.” In context ↗ Gut side effects
- Alprazolam (Xanax)“I find that they actually make anxiety worse when they wear off” In context ↗ Mood or psychiatric effects
- Alprazolam (Xanax)“I found myself becoming very dependent on it and it was difficult to eventually get off of.” In context ↗ Withdrawal problems
- “I noticed when I took my supplements initially I felt like shit for almost 2 weeks and then it went away” In context ↗ Side effects
- BPC-157“My symptoms after the injected were congestion, headaches, inflammation, itchy skin etc. an all around histamine response” In context ↗ Allergic reaction / anaphylaxis
- BPC-157, Growth-hormone-releasing peptides (sermorelin, ipamorelin, CJC-1295, tesamorelin)“I had a histamine response to it which isn’t supposedly common but does happen, I had the same with CJC.” In context ↗ Allergic reaction / anaphylaxis
- Low-dose naltrexone“The first week I had really bad headaches and nightmares but it went away after that” In context ↗ Side effects
- Whey protein“Whey protein didn’t sit well with my stomach so this was an alternative” In context ↗ Gut side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationTinnitusVision problems
Their words about their symptoms
- Post-exertional malaise
Mostly intolerance to physical activity that causes me to crash for days
In context ↗ - Brain fog
when I experience a flare up these days, brain fog and all the other symptoms come back
In context ↗ - POTS & dysautonomia
remaining long Covid symptoms, pots, dysautonomia, fatigue, etc.
In context ↗ - Mast cell (MCAS) & allergies
I definitely had MCAS in the beginning of LC but I think it’s subsided
In context ↗ - Sleep problems
Low dose naltrexone has helped my sleep and mood quite a bit
In context ↗ - Pain & fibromyalgia
I find my muscle pain is somewhat relieved when I do a very slow hour walk on a treadmill
In context ↗ - Headaches & migraine
I’ve had intense headaches and light sensitivity
In context ↗ - Gut problems
I suffer from pots, pem, shortness of breath, neuropathy and gut issues mainly since 2021
In context ↗ - Light & noise sensitivity
Temperature, sound, sight, all of it
In context ↗ - Breathlessness
I’m on my 4th year of LC and deal with shortness of breath often
In context ↗ - Heart symptoms & palpitations
I’ve had LC now since January and some of the worst symptoms month 1 and 2 were heart related, chest pains and shortness of breath
In context ↗ - Muscle weakness
I would put my fatigue and weakness toward my more manageable symptoms
In context ↗ - Neuropathy & tingling
nerve pain in my spine and numbness in places, which is new
In context ↗ - Anxiety & low mood
the insane anxiety storms, neurological issues and vascular pain have mostly gone away
In context ↗ - Flu-like symptoms
constant sinus issues/throat pain
In context ↗ - Tinnitus
The tinnitus and eye issues still remain
In context ↗ - Temperature regulation
extreme sensitivity to hot days
In context ↗
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