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Long COVID Moderate → near normalIll 4.5 years before improving or writing

Long COVID gasping at night and manual breathing, nearly back to old self after CPAP

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
4.5 years
Last post
Jan 2026
In their words
  • Condition: Long COVIDlong COVID made it so much worse In context ↗
  • At worst: ModerateUsually I have to wait an hour in bed to feel good enough to stand In context ↗
  • Now: Near normalGot a CPAP and I feel nearly back to my old self again!! In context ↗
  • Began after: COVIDthe year I got covid In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A Reddit user with long COVID for about four and a half years described waking in the night gasping, manual breathing and needing to wait an hour in bed before standing, with compression socks worn all day. After getting a CPAP for suspected sleep apnea they said they felt nearly back to their old self, able to get out of the morning instantly and not needing compression socks yesterday. Treatment in the year they got COVID had cost $50,000 with insurance.

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What they tried

What they credit

Their words about each treatment
  • CPAP · Helped a lotI feel like the CPAP is maybe the final thing that's really getting me back on track? In context ↗
  • compression socks · Not saidUsually I have to wait an hour in bed to feel good enough to stand and then I have to wear compression socks all day. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered4.5 y4.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4.5 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
the year I got covidgot COVID, then long COVIDthe year I got covid In context ↗Not stated
before the CPAP (until January 2026)waking at night gasping, an hour in bed before standing, compression socks all dayI have to wait an hour in bed to feel good enough to stand and then I have to wear compression socks all day. In context ↗Moderate
2026-01-28got a CPAP and felt nearly back to their old selfGot a CPAP and I feel nearly back to my old self again!! In context ↗Near normalCPAP and sleep apnoea treatment

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI regularly was waking up in my sleep gasping. In context ↗
  • POTS & dysautonomiaI have to wait an hour in bed to feel good enough to stand In context ↗
  • Breathlessnessmost of my breathing - even after 4 and a half years - is "manual" In context ↗

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