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Condition not stated Moderate → no benefitIll for 5 years

Chronic pain and extreme fatigue, now unable to do anything most of the day after a walk

Condition
Condition not stated
At worst
Moderate (mostly housebound)
Ill for
5 years
Last post
Jan 2026
In their words
  • Condition: Condition not statedI don't think its ME/CFS because I don't have post exertion after slow work out like tai chi or after cognitive tasks like sudoku or a talk with my bf In context ↗
  • At worst: Moderatemake me instanly so tired that I cannot do anything anymore for the majority of the day In context ↗
  • Now: No benefitSince september it got quite bad and the pain came back. In context ↗
  • Began after: nothing they could nameNothing that clearly explains that fatigue.
  • Says they never had: Post-exertional malaiseI don't think its ME/CFS because I don't have post exertion after slow work out like tai chi or after cognitive tasks like sudoku
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A 21-year-old woman had chronic pain for five years, with flares of months and remissions of about a year; in 2025 she went to Spain for Erasmus but began having extreme fatigue and unexplained anxiety. Since September 2025 the pain returned and the fatigue worsened. By January 2026 she was exhausted, unable to do anything for most of the day after a walk, groceries or social contact, and her blood tests and MRI were normal.

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What they tried

Also tried

Their words about each treatment
  • tai chi · Not saidI don't have post exertion after slow work out like tai chi In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered4 y4.2 y4.5 y4.8 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2021chronic pain beganI (21F) have had chronic pain for 5 years with flare ups that last months In context ↗Not stated
2025in Spain for Erasmus, pain in quasi remission but extreme fatigue and new anxiety beganLast year i was in quasi remission and could go to Spain for my Erasmus but I started to experiment extreme fatigue. In context ↗Mild
September 2025got much worse and the pain came backSince september it got quite bad and the pain came back. In context ↗Moderate
2026-01-05exhausted, wiped out for most of the day after any outingIm exausted and I cannot comprehend why I feel like that. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaI (21F) have had chronic pain for 5 years with flare ups that last months In context ↗
  • Sleep problemsEven sleeping 8hours at night, I still needed a 3 to 4 hors nap in the afternoon. In context ↗
  • Anxiety & low moodLast year I also started developping anxiety without a clear reason. In context ↗

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