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ME/CFS Outcome unclear

ME/CFS, optic nerve inflammation after Pfizer, then a Novavax shot

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Oct 2023
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

A Reddit user in ME/CFS and long COVID forums said a second Pfizer dose caused severe side effects, including optic nerve inflammation, so they skipped mRNA boosters. In October 2023 the Novavax shot gave a 101.5 fever, chills, muscle pain and a bad headache, mostly gone in 24 hours. Four days on, swollen lymph nodes, an unwell feeling and fatigue persisted, and they felt worse overall than before.

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What they tried

Their words about each treatment
  • Pfizer · WorseSecond Pfizer was bad with severe side effects (optical nerve inflammation) so I didn't go for any boosters after that In context ↗
  • Novavax · WorseI feel worse overall after getting it. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—severe side effects from second Pfizer dose, including optic nerve inflammationSecond Pfizer was bad with severe side effects (optical nerve inflammation) In context ↗
2023-10-13Novavax shot: fever, chills, muscle pain, bad headacheGot a 101.5 fever starting 10 hours after, chills, muscle pain and a terrible headache. In context ↗
2023-10-16four days after Novavax, still unwell and feeling worse overallSwollen lymph nodes, overall "unwell" feeling and fatigue are still here, 4 days after. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Headaches & migrainea terrible headache In context ↗
  • Temperature regulationGot a 101.5 fever starting 10 hours after, chills In context ↗
  • Flu-like symptomsSwollen lymph nodes, overall "unwell" feeling and fatigue are still here, 4 days after. In context ↗

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