Long COVID with 52 symptoms, nearly back to normal with time and rest; neuropathy remains
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2.5 years
- Last post
- Jan 2024
In their words
- Condition: Long COVID
I am recovered too I’m 2.4 years out from vaccine injury.
In context ↗ - Now: Near normal
Mostly recovered 2.4 years out except neuropathy in one foot only.
In context ↗ - Began after: a vaccination
I’m 2.4 years out from vaccine injury
Read from 10 of their posts and comments; links to the 6 this page draws on
Summary
They dated their illness to a vaccine injury in 2021 and described having 52 symptoms, including mild MCAS and neuropathy. With time and lots of rest they improved to about 90% within 26 months. By early 2024 neuropathy in one foot remained as their last symptom, with burning feet and sometimes hands after sugar, gluten or alcohol; it had returned after a long absence, and exercise was limited to walking or swimming.
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What they tried
What they credit
Also tried
Their words about each treatment
- Time · Helped a lot
Time helped mostly, with loads of rest.
In context ↗ - walking or swimming · Not said
I basically can only tolerate walking or swimming and I don’t over do it.
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.2 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | illness began after a vaccine injuryI’m 2.4 years out from vaccine injury. I had everything.In context ↗ | Not stated | |
| 2023-11 | improved to about 90% with time and restI’m better after 26 months except I still get flare ups of neuropathy in one foot only.In context ↗ | Near normal | Time and spontaneous remission |
| — | relapse of burning feet and hands after sugar, gluten or alcoholIf I hit the sugar / gluten or alcohol I tend to relapse only with burning feet and sometimes hands.In context ↗ | Not stated | |
| 2024-01 | mostly recovered, only neuropathy in one foot leftMostly recovered 2.4 years out except neuropathy in one foot only.In context ↗ | Near normal |
Adverse events
- “Be carful with it ! Go slow. I flared big time . But I think it does help.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I still get flare ups of neuropathy in one foot only
In context ↗ - Mast cell (MCAS) & allergies
It’s my last symptom to go with mild MCAS.
In context ↗
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