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Long COVID Severe → no benefitIll for 4 years

Long COVID with insomnia, cognitive deficits and fatigue, no overall improvement

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
4 years
Last post
Jun 2024
In their words
  • Condition: Long COVIDdealing with LH In context ↗
  • At worst: SevereI was sick and on bedrest for 13 weeks In context ↗
  • Now: No benefitas it hasn’t for me In context ↗
  • Began after: COVIDonce I contracted Covid in 2020
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

Tundra 35515 contracted COVID in 2020 and was still ill with long COVID in June 2024, reporting severe insomnia, cognitive deficits, executive dysfunction and fatigue. During the first 13 weeks they were on bedrest and slept only 3–5 hours a week. In July 2023 they attempted suicide after feeling dismissed by doctors and were found unresponsive. Pepcid and Allegra lessened symptoms somewhat, and Adderall helped focus and fatigue, but they said the illness had not improved overall.

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What they tried

Their words about each treatment
  • THC gummies · Helpednothing really helps except THC gummies. The gummies do help me some In context ↗
  • Pepcid · Helpedthe best thing I was prescribed is a twice daily dose of Pepcid and Allegra. It doesn't alleviate my symptoms but it does lesson them In context ↗
  • Adderall · Helpedthey also prescribed me Adderall which helps with my focus issues and also assists with lessoning the fatigue I suffer from In context ↗
  • ganglion block procedure · HelpedI was also prescribed a ganglion block procedure, that minimally helped In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2020initial Covid infection; bedrest for 13 weeks with almost no sleepDuring my initial Covid infection, I was sick and on bedrest for 13 weeks and during that 13 weeks, I was lucky to get 3-5 hours of sleep a week. In context ↗Severe
July 13thsuicide attempt after feeling dismissed by doctors; found unresponsiveI became so overwhelmed with the dismissive nature is the general medical establishment that I did attempt to take my life. In context ↗Not stated
2024-06-26still ill; symptoms lessened but not alleviatedit hasn’t for me and by personal LH journey In context ↗Not stated

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsmy insomnia is not as bad as that but I do now suffer from insomnia terrible In context ↗
  • Brain fogI also have cognitive deficits and executive dysfunction and ADD that I didn’t really have an issue with until Covid In context ↗
  • Anxiety & low moodI became so overwhelmed with the dismissive nature is the general medical establishment that I did attempt to take my life. In context ↗

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