Long COVID brain fog while working, now 95% back to baseline on ketotifen
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 19 months
- Last post
- Mar 2025
In their words
- Condition: Long COVID
I'd say I'm 95% back to my pre-covid baseline.
In context ↗ - At worst: Mild
Today my brain fog seems to have diminished to the point I feel more productive at work.
In context ↗ - Now: Near normal
I'd say I'm 95% back to my pre-covid baseline. Still a couple foods that trigger mast cell activation, but totally manageable.
In context ↗ - Began after: COVID
19 months post infection
In context ↗
Read from 8 of their posts and comments; links to the 7 this page draws on
Summary
Fjord 81921 got long COVID in late 2020 and was working with brain fog when a first Moderna shot in March 2021 eased it. In March 2022 a treatment round helped only briefly before symptoms returned, but by June 2022, 19 months after infection, they were 95% back to baseline on ketotifen, famotidine and cetirizine, with only a few foods triggering mast cell activation. Ketotifen cost $100 a month in the US, so they stocked up in Mexico for $5 a month. In 2025 they said they had taken it for around 2.5 years, and curcumin helped brain fog and head congestion.
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What they tried
What they credit
Also tried
Their words about each treatment
- Moderna shot · Helped
Today my brain fog seems to have diminished to the point I feel more productive at work.
In context ↗ - the round (unspecified course) · Helped
Seemed to have helped after a couple days, but a week after finishing the round symptoms came back.
In context ↗ - ketotifen · Helped a lot
I had amazing results with ketotifen!
In context ↗ - famotidine · Helped
I still take the ketotifen along with famotidine 2x daily.
In context ↗ - cetirizine · Helped
Cetirizine 1x daily.
In context ↗ - quality curcumin supplement · Helped
I also found taking a quality curcumin supplement helpful with relieving brain fog and head congestion, but nowhere near as helpful as the ketotifen.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Antihistamines & MCAS
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | Long COVID after infection19 months post infectionIn context ↗ | Not stated | |
| 2021-03-09 | First Moderna shot; brain fog eased, more productive at workToday my brain fog seems to have diminished to the point I feel more productive at work.In context ↗ | Mild | COVID vaccination as treatment |
| 2022-03-01 | head pressure returned a week after finishing a treatment roundSeemed to have helped after a couple days, but a week after finishing the round symptoms came back.In context ↗ | Not stated | |
| 2022-06-16 | 95% back to pre-COVID baseline on ketotifen, famotidine and cetirizineI'd say I'm 95% back to my pre-covid baseline.In context ↗ | Near normal | Ketotifen (Zaditen) |
| 2022-11-21 | facial flushing reduced dramatically by the two-year markJust passed the 2 year mark and my facial flushing has reduced dramatically.In context ↗ | Near normal | Ketotifen (Zaditen) |
| 2025-03-05 | still taking ketotifen 1mg twice daily; curcumin helped residual brain fogI took 1mg twice dailyIn context ↗ | Near normal | Ketotifen (Zaditen) |
Adverse events
- COVID vaccination as treatment“I got my first Moderna shot about 24 hours ago. My arm is sore at the injection site.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
quality curcumin supplement helpful with relieving brain fog and head congestion
In context ↗ - Mast cell (MCAS) & allergies
Still a couple foods that trigger mast cell activation, but totally manageable.
In context ↗ - Headaches & migraine
I've noticed I get the intense pressure when I lay down, but when standing it eases up.
In context ↗
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