ME/CFS symptoms for years: exhaustion, headaches, afternoon crashes, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 8 years
- Last post
- Aug 2023
In their words
- Condition: ME/CFS
I’ve just recently stumbled upon CFS as an answer to my symptoms.
In context ↗ - At worst: Moderate
but around 12 or 1pm I crash until whenever I can get myself out of bed
In context ↗ - Now: No benefit
for the past moth I’ve been having the worst time of my life
In context ↗ - Began after: nothing they could name
All of these symptoms have dated back to about 2015 which was before I was even diagnosed with any of the above.
In context ↗ - Says they never had: Anxiety & low mood
nor am I depressed and cant get up
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They had not been officially diagnosed with CFS, but since about 2015 had suffered exhaustion, headaches, migraines and poor concentration, and said the past month had been the worst of their life. They had taken antidepressants for five years and were being treated for Hashimoto thyroiditis and vitamin and iron deficiencies while still having symptoms. They crashed into bed each afternoon and had no energy to study.
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What they tried
Also tried
Their words about each treatment
- thyroid medication · Helped
medicating it has been successful, as said by my doctor
In context ↗ - supplements for vitamin deficiency · Not said
a vitamin deficiency as well as an iron deficiency which I've been taking supplements for
In context ↗ - antidepressants · Not said
I've been on antidepressants for about 5 years too
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 8 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2015 | symptoms beganAll of these symptoms have dated back to about 2015 which was before I was even diagnosed with any of the above.In context ↗ | Not stated |
| July 2023 | worst month of their life, exhausted by simple tasksfor the past moth I’ve been having the worst time of my lifeIn context ↗ | Moderate |
| 2023-08-04 | crashing each afternoon, unable to study for an examI have had absolutely no energy studyIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Brain fog
having an extremely hard time focusing on anything and especially remembering anything
In context ↗ - Headaches & migraine
getting daily headaches and sometimes migraines
In context ↗ - Sleep problems
around 12 or 1pm I crash until whenever I can get myself out of bed
In context ↗