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ME/CFS Moderate → no benefit

ME/CFS: no improvement, still too tired to do much after a quarter-mile in an hour

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Apr 2013
In their words
  • At worst: ModerateI'm still too tired to do much of anything In context ↗
  • Now: No benefitthere has been no improvement yet and I'm still too tired to do much of anything In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

The user was on thyroid therapy, sleep aids, pain management and nutritional supplements, and their doctor urged more activity. They walked a quarter mile in an hour with breaks, exhausted afterwards, and reported no improvement and still being too tired to do much. A hot shower after exertion helped with muscle pain/weakness.

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What they tried

Also tried

hot shower· Helpedsleep aids· Not saidpain management· Not saidnutritional supplements· Not saidtrying to be more active· Not said
Their words about each treatment
  • sleep aids · Not saidI am on thyroid therapy as well as sleep aids, pain management, and a bunch of nutritional supplements. In context ↗
  • trying to be more active · Not saidMy doctor is trying to get me to be more active, and I'm really trying In context ↗
  • hot shower · Helpeda nice hot shower directly after any physical exertion really helps with the muscle pain/weakness. It postpones it at least. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI need one that takes my Post Exertional Malaise into account In context ↗
  • Pain & fibromyalgiareally helps with the muscle pain/weakness In context ↗

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Asking aboutLake 18024’s story

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