Long COVID with 20-hour sleep on days off, now nearly normal after antihistamines
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 6.5 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
Not every long covid is the same there are a few subtypes but I knew mine was inflammation based
In context ↗ - At worst: Mild
I never could stop working, at one point I was sleeping the entirety of my days off; 20 hours at a time at one point.
In context ↗ - Now: Near normal
I am not nearly as energetic as before but I'm living fairly normal, just not doing alot of high energy things outside of work.
In context ↗ - Began after: COVID
I was a first-waver though
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Bluebell 42474 fell ill with COVID-19 in the first wave and kept working out of necessity, sleeping up to 20 hours on days off. Antihistamines, a low-histamine diet, LDN, HRT and microdosed ozempic brought them to fairly normal living, though less energetic than before; a week of prednisone for poison ivy cleared symptoms entirely. After a flu and pancreatic pain they stopped ozempic and were doing ok as of September 2026.
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What they tried
What they credit
Also tried
Their words about each treatment
- antihistamines · Helped a lot
I did start antistamines fairly early in, which imo is what saved me.
In context ↗ - HRT · Helped
I got punted straight into perimenopause. HRT has helped sleep and some of the fatigue.
In context ↗ - counting spoons technique · Not said
I use the counting spoons technique to manage energy and trying to limit crashes.
In context ↗ - LDN · Not said
Then switched to LDN.
In context ↗ - microdosing ozempic · Helped
I notice a difference in lungs, sinuses, mental clarity, energy, migrains. It's not a miracle but it helps me.
In context ↗ - pedialyte / salt · Worse
Sometimes pedialyte which is loaded with salt actually lowered my blood pressure!
In context ↗ - prednisone · Helped a lot
I knew mine was inflammation based because it dissappeared entirely the week I had prednisone for poison ivy.
In context ↗ - low histamine foods · Helped
I went for low histamine foods. Cut out the major allergens like milk, soy, gluten. ... on my worst days I am still not as bad off as before.
In context ↗
Approaches: GLP-1 drugs · H1 antihistamines · Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 5.5 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | COVID-19 in the first waveI was a first-waver thoughIn context ↗ | Not stated | |
| first few years | kept working full time, sleeping up to 20 hours on days offI never could stop working, at one point I was sleeping the entirety of my days off; 20 hours at a time at one point.In context ↗ | Mild | |
| fairly early in | started antihistamines, which they credit with saving themI did start antistamines fairly early in, which imo is what saved me.In context ↗ | Mild | H1 antihistamines (unspecified) |
| — | symptoms vanished for the week of prednisone for poison ivyit dissappeared entirely the week I had prednisone for poison ivyIn context ↗ | Near normal | Corticosteroid pulses |
| — | responded to an anti-inflammatory low-histamine meal planit responded to an anti inflammatory meal planIn context ↗ | Mild | Low-histamine diet |
| 2025 | bad flu then pancreatic pain; stopped microdose ozempicI had got a bad flu that lasted a week, then a few days later the pain there.In context ↗ | Mild | |
| 2026-01-28 | living fairly normal, less energetic than beforeI am not nearly as energetic as before but I'm living fairly normal, just not doing alot of high energy things outside of work.In context ↗ | Near normal | |
| 2026 | lighter flu with a mild inflammatory incidenta mild incident this year after a lighter fluIn context ↗ | Mild | |
| 2026-09-22 | doing ok, off ozempic while awaiting pancreas checkDoing ok. ... already doing ok.In context ↗ | Near normal |
Adverse events
- Salt, electrolytes and fluids“Sometimes pedialyte which is loaded with salt actually lowered my blood pressure!” In context ↗ Low blood pressure or fainting
- Semaglutide (Ozempic, Wegovy)“My pancreas might have got inflammed though, had to stop the microdose of ozempic and really feeling it. I had got a bad flu that lasted a week, then a few days later the pain there. I think med+ LC+flu was too much.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Spent too many spoons and crashed.
In context ↗ - POTS & dysautonomia
POTS. Exercise intolerance.
In context ↗ - Sleep problems
HRT has helped sleep and some of the fatigue
In context ↗ - Headaches & migraine
I notice a difference in lungs, sinuses, mental clarity, energy, migrains.
In context ↗ - Brain fog
I don't remember alot of the first few years.
In context ↗
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