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Long COVID Mild → somewhat better

Long COVID with AFib, rashes and burning mouth, now somewhat better after cardiac ablation

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
Not stated
Last post
Oct 2023
In their words
  • Condition: Long COVIDI’ve had the same exact symptoms in my mouth especially after my boosters. In context ↗
  • At worst: MildI ride a stationary bike to music and keep the heart rate from going as high as before In context ↗
  • Now: Somewhat betterNow I’m doing much better. In context ↗
  • Began after: a vaccinationI had weird rashes and developed burning mouth right after my 3rd and 4th shots
Read from 20 of their posts and comments; links to the 16 this page draws on

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Summary

Creek 24481, a woman in her forties, developed AFib in 2018 after a viral infection; it worsened over the years. Rashes and burning mouth followed her third and fourth COVID shots, and another vaccine flared them again. A cardiac ablation in summer 2023 left her much better; a COVID infection that autumn briefly upset her heart for about a week. She reported doing much better after the ablation and has described exercising with lighter weights and a monitored heart rate.

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Asking aboutCreek 24481’s story

What they tried

Their words about each treatment
  • Digest Basic enzyme (Enzymedica) · Helpednothing helped until I started to take an enzyme. It really turned things around for me In context ↗
  • New Chapter All Flora · HelpedNew Chapter All Flora really helped me after a terrible bout of stomach flu. In context ↗
  • valtrex · No changeI’ve also tried a course of valtrex for HSV1 ... Neither really helped. In context ↗
  • Diflucan · No changeI then tried multiple days of Diflucan in case it was thrush. Neither really helped. In context ↗
  • xylitol gum · HelpedGum with xylitol helps to keep mouth moisturized. In context ↗
  • scaling down workouts and watching heart rate · Not saidIt was hard for me to accept that I had to scale down my workouts. In context ↗
  • yoga, stretching, Pilates, walks, meditation · Not saidincorporate yoga, stretching, Pilates, walks, meditation In context ↗
  • beta blocker · HelpedI just take a beta blocker when needed ... I find it alleviates the anxiety, which helps to reduce the frequency of palpitations. In context ↗
  • fresh grated ginger in herbal tea · Helpedfresh grated ginger jn some herbal tea or just warm water was probably one of the things that helped me the most In context ↗
  • NAC · WorseI have AFib and when I tried NAC it sent me into an episode. Happened multiple times so I stopped taking it. In context ↗
  • pre wash probiotic mouthwash (Dessert Essence) · HelpedI’ve been using a pre wash probiotic mouthwash from dessert essence and it helps a little In context ↗
  • nattokinase · WorseI have AFib and it triggered episodes for me. In context ↗
  • Rx mouthwash · Not saidI did Rx mouthwash a few times In context ↗
  • Mucinex · Not saidmusinex to loosen the phlegm In context ↗
  • lung support tincture · Not saida lung support tincture In context ↗
  • elderberry syrup · Not saidelderberry syrup In context ↗
  • Tylenol · Not saidTylenol for fevers In context ↗
  • NyQuil and DayQuil · Not saidNyQuil and DayQuil (I have to take the high blood pressure version due to AFib) In context ↗
  • tea with turmeric, ginger, black pepper, lemon and honey · Not saidtea with freshly ground turmeric, ginger, black pepper, lemon, and honey In context ↗
  • bone broth with turmeric and ginger · Not saidI ate bone broth again with the turmeric, ginger, black pepper. In context ↗
  • ion drops, Celtic salt, electrolyte powder, coconut water · Not saidreplace the minerals with ion drops or Celtic salt or an electrolyte powder In context ↗
  • hot showers with door closed for steam · Not saidHot showers with door closed for steam. In context ↗
  • eucalyptus and other essential oils · HelpedSmelling essential oils - the stronger ones to start really helped me too. In context ↗
  • cardiac ablation · Helped a lotI had an ablation earlier this summer and things have been much better since. In context ↗
  • COVID vaccination as treatment · Not saidI’ve had the same exact symptoms in my mouth especially after my boosters. ... I had weird rashes and developed burning mouth right after my 3rd and 4th shots
  • Flu vaccine · Not saidIt made my vaccine issues flare up :( Day 9 and still affecting me. ... my main vaccine flare (horrible burning mouth issues, etc) is still bad

Approaches: Surgery & structural

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2018developed AFib after a viral infection, aged 38I first developed AFib in 2018 from a viral infection. In context ↗
2022, after 3rd and 4th shotsrashes and burning mouth after COVID vaccine boostersI had weird rashes and developed burning mouth right after my 3rd and 4th shots (definitely the 4th, less with the 3rd). In context ↗
2022-11-05flu shot flared vaccine issuesIt made my vaccine issues flare up :( Day 9 and still affecting me. In context ↗
2022-11-30scaled down workouts, monitors heart rate, lighter weights, yoga, walksIt was hard for me to accept that I had to scale down my workouts. I now pay close attention to my heart rate In context ↗Pacing and the energy envelope
summer 2023cardiac ablation for AFibI had an ablation earlier this summer and things have been much better since. In context ↗
September 2023COVID infection; heart wonky for about a week afterwardsThen I got Covid and did ok during the sick phase, but right after heart was wonky for about a week. In context ↗
October 2023reports doing much betterNow I’m doing much better. Rest, hydration, better sleep helped. In context ↗

Adverse events

  • COVID vaccination as treatment“I’ve had the same exact symptoms in my mouth especially after my boosters. ... I had weird rashes and developed burning mouth right after my 3rd and 4th shots” Autoimmune or inflammatory flare
  • COVID vaccination as treatment“I did fine until my 4th shot and then my immune system started overreacting.” In context ↗ Autoimmune or inflammatory flare
  • Flu vaccine“It made my vaccine issues flare up :( Day 9 and still affecting me. ... my main vaccine flare (horrible burning mouth issues, etc) is still bad” Autoimmune or inflammatory flare
  • NAC (N-acetylcysteine)“I have AFib and when I tried NAC it sent me into an episode. Happened multiple times so I stopped taking it.” In context ↗ Heart rhythm problems
  • Nattokinase“I have AFib and it triggered episodes for me.” In context ↗ Heart rhythm problems
  • Cardiac ablation“I believe less sore throat/chest irritation (that only lasted a few days for me” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsI have AFib and I just take a beta blocker when needed. In context ↗
  • Gut problemsI developed GERD after the stomach flu a handful of years ago. In context ↗
  • Loss of smell or tasteEucalyptus and other essential oils i smelled periodically to help get my loss of smell back. In context ↗
  • Breathlessnesswas unable to breathe for like 6 hours same with father In context ↗

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