ME/CFS
Severe → much betterIll 14 months before improving or writing
Out of work and bedbound or housebound with ME/CFS for almost a year, now much better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 14 months
- Last post
- Dec 2017
In their words
- Condition: ME/CFS
Officially diagnosed with CFS in April or May 2017.
In context ↗ - At worst: Severe
Before I was bed bound and I barely watched tv, my brain got overwhelmed with processing storylines and movements. I couldn't even do dishes.
In context ↗ - Now: Much better
I improved enough to work part time but I still require 13 hours of sleep and I don't do anything on my days off
In context ↗ - Began after: another virus
I got some weird virus that may have been viral meningitis and it my life changed forever.
Summary
Gull 67593 became ill in August 2016 after a viral infection, was out of work and bedbound or housebound for almost a year, with severe brain fog and weakness. From October 2017 they improved slowly to part-time work of 15 hours a week and about 75% functional, though still needing 13 hours of sleep and resting on days off. They described the recovery as a very slow uphill and did not credit a specific treatment.
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What they tried
Also tried
Their words about each treatment
- two types of benzos · Worse
the combination of two types of benzos and gabapentin have sent me into a daze on an empty stomach
In context ↗ - in-patient rehab and psych ward · Not said
I've been in-patient a few times between November-April.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| August 2016 | viral onset, instantly out of work, bedbound/housebound for almost a yearBasically I've been dealing with this since August 2016. Instantly out of work, it hit like a train.In context ↗ | Severe |
| October 2017 | began gaining strength, chores and drivingIn October I slowly began to gain some strength and began doing chores.In context ↗ | Moderate |
| 2017-11-17 | working part-time and about 75% functionalI went from being bedbound/housebound for almost a year to now 75% functional.In context ↗ | Mild |
| 2017-12-18 | part-time work, still needing 13 hours of sleep and resting on days offI improved enough to work part time but I still require 13 hours of sleepIn context ↗ | Mild |
Adverse events
- Benzodiazepines (unspecified)“the combination of two types of benzos and gabapentin have sent me into a daze on an empty stomach” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
The brain fog was so bad I gave up driving.
In context ↗ - Sleep problems
I still require 13 hours of sleep
In context ↗ - Muscle weakness
Some days I felt so weak I thought maybe I wouldn't wake up the next day
In context ↗ - Anxiety & low mood
sometimes I was OK with that
In context ↗ - Light & noise sensitivity
my brain got overwhelmed with processing storylines and movements
In context ↗