ME/CFS
No benefitIll for 36 years
ME/CFS for over 36 years with brain fog and reactive depression; combined pill no benefit
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 36 years
- Last post
- Aug 2024
In their words
- Condition: ME/CFS
I’ve had ME for 36+ yrs.
In context ↗ - Now: No benefit
I have struggled with reactive depression since I got ME at ~17 as the depression relates to my situation and what I can’t do.
In context ↗
Summary
Pond 52853 has had ME for over 36 years, since about age 17, with reactive depression tied to what she cannot do and brain fog. She could not tolerate the combined contraceptive pill, which gave her headaches and left her feeling extra poorly, and used progestogen-only methods instead: the pill, 12-weekly injections and an implant. One implant caused ten weeks of bleeding before removal; she had two children.
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What they tried
Also tried
Their words about each treatment
- combined pill · Worse
I never got on with the combined pill ever!
In context ↗ - progesterone only pill · Helped
Once I was on the progesterone only pill for a few months and things settled down
In context ↗ - 12 weekly injection depoprovera · Helped
ended up on the 12 weekly injection depoprovera I think it was called
In context ↗ - 3 year implant (progesterone only) · Helped
I also had the 3 year implant (progesterone only) too which worked very well.
In context ↗ - oestrogen patches as part of hrt · Worse
using oestrogen patches as part of hrt with oral progesterone is pants
In context ↗ - oral progesterone (as part of hrt) · Worse
the oral progesterone not absorbing consistently
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| age ~17 | ME began at about age 17since I got ME at ~17In context ↗ |
| 2024-08-14 | still has ME, now menopausal and on HRThad ME for 36+ yrsIn context ↗ |
Adverse events
- Combined birth control (pill, patch or ring)“the headaches and extra poorly feelings the combined pill were giving me left” In context ↗ Side effects
- Combined birth control (pill, patch or ring)“as the headaches and extra poorly feelings the combined pill were giving me left, I actually felt better mood wise” In context ↗ Made symptoms worse
- Progestin-only birth control (mini pill, implant or shot)“I had another implant put in and I bled and bled. After 10 weeks I got it taken out” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
went onto the implant after going overdue on the injection because of brain fog
In context ↗ - Anxiety & low mood
I have struggled with reactive depression since I got ME at ~17
In context ↗ - Headaches & migraine
the headaches and extra poorly feelings the combined pill were giving me left
In context ↗ - Gut problems
tummy issues don’t affect injestion which meant the dose was more consistent
In context ↗